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Treatment for MAC

MAC & Bronchiectasis | Last Active: Feb 5 5:54pm | Replies (50)

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@cwal

Yes, I am apprehensive about the side effects (and the LONG course of treatment) also. I believe there are a couple of studies on different therapies in process. Hope these prove to be fruitful and provide better options for us.

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Replies to "Yes, I am apprehensive about the side effects (and the LONG course of treatment) also. I..."

Stanford where one of my pulmonologists is told me about a 2 drug study. I talked to my local pulmonologist who said I’d be doing that study for months not knowing and then have to do the 3. I decided to not do the 2 drug

I was on the Big 3 due to my immune compromised state due to cancer treatment. I thought my eyeglasses were dirty until I suddenly could not read the Netflix descriptions on the tv. I immediately stopped the meds .One group of doctors said they didn’t see any problems so I went to another group and was told that my optic nerve was not smoothe as it should be.They wanted me to go to the hospital immediately and get I’ve steroids. I chose time instead ,as I read that the only difference would be the amount of time it would take for your eyes to heal as much as they would either way. I experienced color blindness,cloudy sight,could not drive for 5 months. I now am driving ,different light can have an effect on my sight ,glasses are definitely needed for reading. But I am ok ,I can function with the sight that returned. My last scan showed that MAC has increased and I have no symptoms….I have so many questions and to top this all off I am an organic farmer,small farm but always in the dirt.