Wow, what a journey. I'm sorry to hear it, it sounds like it's been really tough. When I got sick (double vision, couldn't hardly walk) my first MRI was on an old, low-res machine and showed one big lesion. The neurologist said it was likely a brain tumor and very glumly agreed to let me go home and follow up with my primary care physician. I remember standing at the elevator feeling desperate to get out of the hospital and go do "something fun with my remaining time on earth" LOL! I also was thinking, "Well, why not me?" At 55 I was nowhere near done with life but I also felt fortunate for the good life I've had. The next diagnosis was Lyme disease based on a false positive Lyme test. Then my neurologist was at an international conference (purely by coincidence) and when he presented my strange peppered lesions MRI (from a new, high res machine), someone in the back yelled out "It's CLIPPERS". Were it not for that amazing stroke of luck, who knows when I would have been diagnosed. I had a bad crash before we got it all sorted but with my first megadose (1000 mg of Prednisone in the hospital on 3/16/22) I was on the mend and have continued to recover since. I was on Pred for 8 months, did a verrryyy slow taper off. Now I have only vestigial minor symptoms. I attribute the recovery 100% to the initial course of Pred, but I also get a Rituxan infusion every 6 monts. I try to eat healthy but I still eat cookies and drink wine (really should stop). I try to exercise but that's mostly just riding a stationary bike, yoga on YouTube and walking (really should bump that up). The biggest thing I do that's new is live every day with gratitude for being alive and, honestly, I think that's helped a lot. I was a total stress monger before but now I work hard to keep stress under control. I think that stress was the biggest factor in my health getting bad.
I also was unable to work but I had savings thankfully and have been able to return to work since then, although I'm a little bit slower now. Even when I was very sick I tried to do things around the house as my partner had to do more of the business of running our lives. Taking on any chores I could really helped me not feel like a victim. Doing dishes and sweeping the floor with double vision is tricky but worth it. I did have one bad fall (broke a vertebrae in my back) but still, careful movement was very helpful in my recovery.
I know it's weird when people say you're "brave" for continuing along, I mean, what choice do you have? But you ARE brave for keeping on. I really hope you get better. That scar looks pretty metal, so you got that going for you at least.