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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)

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@victoria15

On January 18, I had Moh’s Surgery on my vulva. It took 4 stages, but I was left with clear margins. All the scouting biopsies done the week before revealed all negative for EMPD except the original. Hopefully, it is gone and won’t return though there is a 5% chance it will. Feb 1, I go for a CT scan with dye to make sure there are no underlying malignancies. Then I hope to put this behind me.

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I should add that I am recovering nicely, and though sitting is a little uncomfortable, I am very glad I chose Moh’s surgery rather than a partial vulvectomy!