← Return to Undiagnosed Autoimmune Disease - No one will listen to me

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@oldkarl

katies0lvi3 (@katies0lvi3) HEY, Friend... You sound like me. I just found out what I have, after struggling with it for 84 years. No doctor would listen to me until this year. Every one said they thought I had something, but no one would order a DNA test until now. And now I am hearing the truth. LGMD-R23, Bone Cancer in most of the bones in my body (ribs, legs, arms, skull, teeth, hands, hips, shoulders, etc.), Diabetes 2, Chronic heart disease (at one time I had 23 stents), soft tissue cancers (kidneys, esophagus, stomach, gallbladder, prostate, thyroid, eyes, etc). But I have lived a good life. Three College degrees, 20 books, 2 heart bypasses, football for 50 years (playing, coaching, officiating), visited 48 states, half of Mexico and Canada, 50 years pastoral ministry, 10 grandchildren, 25 great-grandchildren, including about 1/3 of family with military experience. You can do all this and more. What you must do is just commit to doing what you want, and shove the health issues to the side. The only person you will hurt is any doctor who will not listen. They will hurt in the paycheck. oldkarl

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Replies to "katies0lvi3 (@katies0lvi3) HEY, Friend... You sound like me. I just found out what I have, after..."

OldKarl, God bless your positive attitude despite your long journey to the truth!
Your words rang true for me. Like most with a chronic mystery condition, I’ve been focused overmuch on the mystery and have spent too many years mourning the loss of my previous lifestyle and abilities. Although it has felt hopeless at times, I know at heart that there is much still to be grateful for and in which to find joy.
Thank you!

I recently sent in a 23andMe health product hoping it will reveal something useful.