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Small fiber neuropathy and muscle tightness

Neuropathy | Last Active: Jan 27 12:16pm | Replies (34)

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@julbpat

When I stop to think about some of the ways my SFN has progressed, this increased problem with my thighs (IT band) and probably the areas below that has been very gradual. What used to be an annoyance eight years ago is now routine. My days of enjoying brisk walks are long gone. Now shopping without a cart is something I dread. I think leaning on the cart allows my tight leg muscles to periodically rest.
Yesterday I went to a large store to look at clothes. There are no carts, and because my left hand has stitches from carpal tunnel surgery, I couldn’t give up my right hand and use my trekking pole, which I’ve started using in situations like that. (I have a cane, but it elicits more sympathetic looks than the trekking pole). Anyway, I tolerated one trip around the store, arms aching from sifting through racks and carrying a few clothes to the dressing room. As usual, my legs were fatigued, my gait was getting stiff, and of course there was pain.
This is disease progression. It sneaks up on you.
I’ve made an appointment with UAB next month to review these slow changes, maybe to get a better view of the future.

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Replies to "When I stop to think about some of the ways my SFN has progressed, this increased..."

Good evening @julbpat, Oh my goodness, I don’t even go shopping any more in stores. I prefer to shop on line. And if something doesn’t work, I will either return it or depending on the cost,……donate it to Good Will. I really don’t go out enough to need clothes like I used to when I had my Art Gallery. Like you, I want to avoid pain and fatigue,

I too feel that this is the result of the progressive nature of SFN. Would it be possible for you to share the results of your appointment next month?

May your struggles and sorrows be eased,
Chris

Consider having them check your tailbone, reason I say this I had a spinal fusion they say is healed but pain is worse. I have just started pelvic therapy and my tailbone is bent from using a cane, I never know which nerve is going to zap or go numb. I’m like you or was I always leaned on a cart ( which I wish they would round those plastic pieces so they don’t hurt your arms) mine is so bad now I won’t go in a store unless they have an electric scooter. Praying you find relief!