My Experience with Evenity

Posted by ella5321 @ella5321, Jan 16 11:42pm

I just finished my 12th set of Evenity injections today. I wanted to share my experience with other people who are considering starting Evenity or are already receiving the injections.

Cost and Ordering
My Medicare Advantage Plan covered most of the cost of the medication, and it was authorized very quickly. My out of pocket cost for all the medication was about $2800. My copayments varied depending on which coverage stage I was in. I used my insurance company’s online pharmacy, and the syringes were shipped to my doctor’s office. I never had to pay for the administration of the medication, which was always done by a medical assistant. I saw my doctor several times during the 12 months. The last visit was to go over what happens next.

Side Effects
I experienced some of the side effects listed on Amgen’s website, although not all at the same time. I reported the side effects to my doctor and to Amgen. The side effects included injection site pain, bone pain, joint pain, muscle pain, eczema-like rashes, and fever. I never considered stopping the treatment due to the side effects. The majority of the side effects that I experienced didn’t last very long after each set of injections- sometimes just a day or two. The eczema-like rashes lasted a couple of months.

After Evenity
The next steps are a bone density scan and Prolia injections which are once every 6 months. I’m not sure how long I will be on Prolia.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@lauratys

I tried Fosomax for two months and all aching/joint pain came back. Switched to once a month Actonel and I’m fine. A little achy at times but totally manageable. Hope this helps! PS After struggling with Evenity I didn’t want Reclast yearly injection as I didn’t want to take a chance on same type adverse reaction.

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Thanks

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@lauratys

Evenity is a 12 month course of injections, 2 each month. I experienced the muscle/joint aches pretty severely by month 8 or so. I stopped at month 11 and am on Actonel and doing well. I have posted previously about adverse reactions on this site. Hope this helps! Evenity improved my bone density most significantly in my spine and that was the worst site. Went from -3.8 to -2.1. Took all three test spots out of osteoporosis range. It did feel like I had bad arthritis, which I don't but after 6 months it went away for the most part. I think a bit of aching I have now may be from Actonel but easily tolerated and not debilitating like last months of Evenity. I don't regret doing it but at the time when I was so uncomfortably I thought I had made a terrible mistake. Best to you!

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Laura- Thank you for this great explanation.

Merry

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How did you make a decision between prolia and reclast

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