I found out the PNET (pancreatic neuroendocrine tumor) on the head of my pancreas last year in May during an MRI scan for my kidneys. It was an incidental finding.

After multiple imaging including a dota-tate scan in September, the specialists at Johns Hopkins told me to wait six months and do another PET scan, since it was small and the tumor is well differentiated (slow-growing).

However, my abdominal pains and back pains come occasionally. I attended a lifestyle center program on disease reversal and since then I noticed that with diet and lifestyle changes, symptoms are almost next to none. If it wasn't for that MRI scan in May, they never would have known about the PNET and would have constantly given me anti-acids.

Today, I rarely have symptoms thanks to a lifestyle change. I'm learning a lot more about PNET after signing up for a group and they sent me reading materials. There is still a lot to learn, especially with insurance coverage and different hospital's procedures.

Finding the right doctor definitely helps: https://www.carcinoid.org/for-patients/treatment/find-a-doctor/