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Treatment for MAC

MAC & Bronchiectasis | Last Active: Feb 5 5:54pm | Replies (50)

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@sueinmn

@mb53 - I see you have been here for a while, but this is your first post, so you may have read a lot of discussions here.
What is prompting the start of treatment now? Have you had recent sputum cultures and/or a new CT that shows disease progression? Other symptoms like weight loss or fatigue? Or a new doc who is encouraging antibiotics?

These are good questions to ask if you really feel like your current situation is stable. Maybe you can ask for evidence, like new studies, that show starting treatment in the absence of increased severity of infection, worsening symptoms, or development of more lung nodules or cavities has better outcomes than watch and wait.

I was one of those people for whom treatment was not optional because a I was severely affected, and I am glad I did it. But if I had few or no symptoms, I would want empirical evidence that it is necessary, because the regimen is not fun for most of us.
Sue

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Replies to "@mb53 - I see you have been here for a while, but this is your first..."

Thank you Sue
My CT’s have gotten a bit worse over the years. I have Bronchiectasis and MAC. I recently caught something from my granddaughter during the holidays and wound up having to take Levaquin for 10 days. I’m back walking and hiking 3-4 miles/day. Is there a concern in waiting to start treatment? Thank you