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DiscussionStatistics on progression free survival while on SSA / Lanreotide
Neuroendocrine Tumors (NETs) | Last Active: Feb 19 10:58pm | Replies (21)Comment receiving replies
Replies to "It’s so hard to generalize one experience to others except as an example. In 2014-15, I..."
I am curious what your average day of food consists of?
God bless
davisnrn:
I read your post I am going to be 70 and I am in my 5th year
I have metastatic NETS of the liver and bones
I have done Lanreotide, Octreotide, Bland Embolization of both sides of my liver
I started Everolimus and after 9 weeks I started having breathing issues which I just found out to be my heart
Are you willing to share your side effects if so I would appreciate that
It’s my need to know if what Everolimus has done to me isn’t permanent
Thank you
And good luck with your journey
Dear davisnrn
Thanks for sharing and hopefully your Mayo review will provide positive results! Did you ever look into Immunotherapy? If yes; is this an option for you?
I am wired the same way as you and not worried if it is out of my control. The one thing I am caring most about is that my wife will be financially secure when I am gone, whenever that is.
Big hugs, Peter