Hi @pamsbass, I had a Pyloric preserving pancreaticoduodenectomy (modified Whipple) liver resection and liver ablation in 2019 to remove the primary NET from the head of my pancreas and two from my liver. The NET on the head of my pancreas was small, only 1 cm. My symptoms first started in 2006 when I was 36 and I was incorrectly diagnosed with IBS, and other incorrect diagnosis as my symptoms progressed. I wasn’t correctly diagnosed until 2012. The first three surgeons I saw recommended watching and waiting as they said where the NET was growing made the Whipple surgery more difficult. From 2012 to 2019 my primary never grew much, but new spots on my liver showed up on scans in 2018. My primary PNET was functioning and made my quality of life horrible for 12+ years. The recovery from surgery was a lot harder than I was expecting but for me very worth it as my quality of life greatly improved after the surgery. All of my symptoms were gone after the surgery. I was in hospital for 14 days, went home with one drain still in as I had a pancreatic leak that was draining over 200ml of fluid a day. The drain healed on its own at 4 months post-surgery. I currently have no signs of disease outside of my liver, there is one spot where my ablation grew back that is still being watched with yearly scans. I took Creon after my surgery until my drain healed, then I didn’t need it, but I am now back on Creon as my enzymes were very low. Over all for me (as each case is different), having the surgery has been a gift I am grateful for each day as it gave me my quality of life back after suffering for years. My advise is to make sure you are seeing a NET specialist and do not hesitate to seek second options so you have enough information to feel comfortable with the decisions on your treatment plan. Wishing you well.