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Small fiber neuropathy and muscle tightness

Neuropathy | Last Active: Jan 27 12:16pm | Replies (34)
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@leonwass

I was diagnosed 15 years ago at UAB Birmingham. Just as they said, it has progressed up my body and now in my face. Also been to Vanderbilt and Mayo Jacksonville. Found no relief, chronic pain at level 7-8. In late stages of SFN, large fibers can also be damaged, this can cause stiffness and pain in the muscles. Like you, I also experience this type of pain. Different than pins and needles and burning. Again, I have found nothing or no one to offer a real pain free plan. Good Luck. Stay Strong.

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Replies to "I was diagnosed 15 years ago at UAB Birmingham. Just as they said, it has progressed..."
John, Volunteer Mentor | @johnbishop | Jan 21 3:40pm

Welcome @leonwass, Sorry to hear you haven't found much relief for the pain. Have you tried any of the complementary or alternative treatments like ones that are mentioned on the Foundation for Peripheral Neuropathy? - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf

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Chris Trout, Volunteer Mentor | @artscaping | Jan 21 4:42pm

Good afternoon and welcome to Connect. It sounds like you could be helpful to others at this point in your experience with SFN. Sometimes, trading things that work for one person with other folks and then back and forth can be very helpful. You, for example, mentioned something I had never seen in writing or didn't know what I was looking at.

I am talking about this sentence. "In late stages of SFN, large fibers can also be damaged, which can cause stiffness and pain in the muscles." I have had SFN for 11 years now and am having a struggle with exactly what you said........large leg muscles or fibers that stiffen up and then cause pain and incapacity. I can slide down the wall or wait till I fall. Neither option provides relief. What do you do when this happens? My MFR therapist works on these legs twice a week. I then use a rubber ball treatment before I get up in the morning in the hope that I can make it to the bathroom.

Lucky me to find your post today.

May you be safe, protected and free from inner and outer harm.
Chris

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