I would personally look for an Integrative Medicine doctor that treats Long Covid. They are out there and they know their stuff. Praying for you and I wish you the best. I care.

That's a new classification for LC that I haver not heard before. I began experiencing LC symptoms in November '21 after my first (and last) Moderna booster. I have been to Mayo and followed their program. When I posed the "am I crazy to think that my LC was caused by the booster" question, medical professionals at Mayo all responded "we have heard that before". So while there is no proved cause and effect, we are not alone. I feel better, not 100%, but better. You are not crazy and not alone. I have only tested positive twice for COVID, both cases being 'bad cold like' and both at least 6 months after my booster. My symptoms were PEM, Exercise Intolerance, Brain Fog, and a head sensation kind of like dizzy and light headed (but at no time have I fallen or really felt like I was going to fall).

I have not had covid as we have taken all precautions, and do to this day, not to catch covid. I do have LC symptoms and my life has changed, I'm hoping not forever. I have been sent to 4 specialists who all find no cause and my doc has said he is "stumped". While two docs have said "Yes, the vaccines could have caused this." ( I am not an anti-vaxer) That's where the conversation ends. No plan, no hope, no ideas from any of them. I'd really like to know if I should continue to get the vaccines. I have constant fatigue, not as bad as it use to be but I now pace my days, constant brain fog, noise sensitivity. I use to be very active and no can only do limited exercise or yard work, house cleaning. I live in Florida where our surgeon general's actions should tell you all you need to know about the attitudes here concerning covid and vaccines. (geez....he's letting measles run wild). If anyone has been told anything about taking future vaccines and LC or PLCVS, I would appreciate hearing about it. May all people on this site find some peace and better health.

Pretty much the same for me.

I'm starting a course of low dose naltrexone to see if that will help.

Best of luck 🙂

The last booster caused an immediate and strong Long Covid relapse for me. No doubt. The response was strong and 22 hours later. No doubt in my mind anyway.

I got COVID Mar 2020. Did not get terribly sick. Got it a second time (tested positive) June '22.

I was feeling close to 100% prior to the second infection. Long, long COVID ever since. There are no clean takeaway conclusions.

After the second Moderna covid vaccine, my wife got sick with chronic fatigue or long-covid like symptoms. It's been years now and she's still debilitated with intermittent fevers. Can anybody help?

Thank you for the info. I am not an anti-vaxer. I believe in vaccines, just think I had a bad experience with this. Personally, I wouldn't trust a doc who petitions against any vaccine. I do however very much appreciate you taking the time to post this information.

I had the 4 Pfizer shots with the same symptoms after each: strong fatigue, muscle aches, breathing difficulties and brain fog. They would last for 3-4 days and I would get better. About a week after the 4th shot, I went on a nature hike with my granddaughter and the next day all the symptoms returned. That was my first PEM and they continued for 1.5 years in a “roller coaster” fashion and I could not plan on doing any family events because I was afraid of “taking a dive” at any time. I never tested positive for Covid and all my annual “wellness” blood tests came out normal, as in pre-pandemic.
Early this year, I saw a study that was done in Italy on using L-Arginine and vitamin C that reduced the Long Covid symptoms. L-Arginine creates nitric oxide that we need to convey oxygen to our tissues. I started taking a low dose and found that the PEM was gone. That encouraged me.
I added L-Citrulline that turns into L-Arginine. I limited the vitamin C to 500mg per day to avoid stomach discomfort that I experienced at 1000 mg per day. My symptoms have drastically reduced. I have added L-Carnitine and Creatine.
Nitric oxide is needed for circulating oxygen to our tissues. It relaxes the blood vessels that allows for better flow of the blood to carry the oxygen. It lowers blood pressure.
However, the production of nitric oxide in our bodies can be reduced by a diet in high salt, high fat or high sugar. It can even be lowered with using a mouth wash that destroys the good bacteria in our mouth. The production system for nitric oxide is very sensitive to what else enters our body.
My theory is that the Covid vaccines impacted our ability to produce nitric oxide which is causing our symptoms. Low oxygen levels in our tissue can cause fatigue, muscle aches, breathing problems and brain fog. I believe that my “roller coaster” symptoms were dependent on the level of nitric oxide producing foods that I consumed, such as beets, celery, cocoa and citrus (vitamin C) that improved my symptoms. They are now my dietary focus. But when I did not have them in sufficient quantity, I “took a dive”.

Below is an excerpt from an article on the study in Italy that showed “chronic fatigue of the post-Covid syndrome is precisely associated with an alteration in the metabolism of arginine” and that “in patients with long Covid there is an alteration of the metabolism of arginine, which stimulates nitric oxide, a key enzyme for proper immune and vascular function.”
The mechanism that leads to chronic fatigue in Long Covid patients has been discovered, according to new Italian research.
“The mechanism of action that leads to the state of fatigue, or disabling exhaustion, linked to Long Covid which affects 1 in 3 people who are victims of the Sars-CoV-2 infection has been discovered: it is triggered by a deficit of arginine, an amino acid naturally produced by the body.
This is demonstrated by a study on long Covid conducted by the Agostino Gemelli IRCCS University Polyclinic Foundation – Catholic University Campus of Rome, according to which the chronic fatigue of the post-Covid syndrome is precisely associated with an alteration in the metabolism of arginine.
The new study highlighted that in patients with long Covid there is an alteration of the metabolism of arginine, which stimulates nitric oxide, a key enzyme for proper immune and vascular function.
The researchers also demonstrated that the administration of 1.6 grams of arginine and 500 mg of liposomal vitamin C for 28 days restores the metabolism of arginine to a normal level and effectively counteracts fatigue.”
https://www.coronaheadsup.com/health/long-covid/long-covid-fatigue-caused-by-an-arginine-deficiency/
If you are on any meds, review them for interactions with L-Arginine supplements, or talk to your doctor.

I did not get the vaccine. I do not really trust the pharmaceutical industry and it came out so fast. I have never gotten a flu vaccine and I have never had the flu. I know that this virus has caused me to go through a slew of autoimmune disease symptoms: IBS, interstitial cystitis, fatigue, joint pain and so on. When I first saw my doctor in 2022, my ANA titer was postive, Epstein Barr was reactivated and the Rheumatoid arthritis Igg was flagged, so they assumed I had RA. I do not have RA. The RA doctor did further bloodwork. I told her I thought it was Long COVID and she rolled her eyes at me and said I treat RA, not Long COVID. Anyway, to make a long story short, they tested me for Lyme disease, Lupus, Sjogren's, and many others. All negative but my symptoms have been familiar with some of these, fatigue being the common denominator. The symptoms are not as bad as they were 2 years ago, but I still awaken with fatigue, some days are worse than others. I still have brain fog and tinnitus, PEM and other strange things, but I am hoping this is going away. In another thread, I talked about Low Dose Naltrexone. It has helped, along with Vyvanse (taken for ADHD), Gabapentin, Dicoflenac (for that poison feeling from fatigue or pain) a magnesium supplement, Omega 3 fish oil supplement. I also try really hard not to drink anything but water, low salt food and little sugar. I hope we all get through this and they find a way to help. I still have people that do not believe me. That is infuriating, but it seems that it is taken more seriously now.

I have that and had really strange symptoms. I went to all of the "ologists", literally all. I've gone through all the tests that you can imagine, even nerve conduction test where the muscles are zapped with electricity. EVERYTHING came out negative but I still wasn't able to live a normal life. I've had doctors look at me like I was a hypochondriac. Little by little the symptoms went away, I still have a couple of them but I am learning to live with them. To me the worst part is over but I won't be vaccinated for anything in my life. The only symptom that was identified and medication has helped is the mental foginess, lack of concentration and looking for words when talking. A psychiatrist gave me Adderall and it has been great!