← Return to Strange thyroid results

Discussion

Strange thyroid results

Autoimmune Diseases | Last Active: Jan 28 9:18pm | Replies (28)

Comment receiving replies
@inminn

Where does one go to find a good doctor? My first, in college, told me unexpected weight gain despite being in several sports, riding my bicycle several miles a day to/from classes and having three pt jobs was because I was drinking too much beer and eating pizza. I was a non-drinker and ate healthfully for sports performance. My second told me I was too young to have a thyroid problem, that only old ladies become hypothyroid. My third told me he “didn’t believe” the hype behind “all this hypothyroid fervor”, said it had nothing to do with weight gain or my unexplained infertility, PCOS, or what had become by then troubling symptoms. He also accused me of looking for an excuse for weight gain for my bad habits (I was a vegetarian and he was obese). Fast forward to now, thirty some years later and I have never had my thyroid under control. My GP doesn’t care how I feel, or which symptoms I display, all she focuses on are the numbers. My TSH is “ slightly too high” but my T4 is barely in range so she keeps my medication at this current level despite hair, skin and nail issues, headaches, visual disturbances, constipation, slow gastric emptying, feeling faint and dizzy and now lethargic all day. I have told her repeatedly that, after thirty years of this I know I need to have my TSH no higher than 2 - 2.5 to feel good and have normal GI functioning and to prevent hair loss, but of course she knows better, being the almighty doctor. My current level is at 5.8, but I know that means nothing without knowing which type of test they use (honestly, standardize it already to prevent confusion between docs using different lab tests!)
The endocrinologist I had been seeing left my insurance clinic system and the department is now short staffed and none are taking new patients, at least not for almost 9 months. Worse for finding new GP’s.
I tried to be seen by Mayo but they determined that I should take it up with my GP. When I told her I would like to see an endocrinologist or internal med again, she became upset and said that I don’t need that, and she marched me to the lab for my recent blood draw.
This is the type of thing so many of us must deal with- Egos over patients’ needs.
Does anyone know of a resource for patients seeking information or ratings on doctors that keeps current and which one does not have to pay to use?

Jump to this post


Replies to "Where does one go to find a good doctor? My first, in college, told me unexpected..."

Hi! I was diagnosed with Hypothyroidism and Hashimoto's Thyroiditis.
My daughter was diagnosed as a teenager! Our symptoms were a lot like yours. Our worst symptoms were exhaustion, fatigue and weight gain . I also had bodily pain
Your lab results at 5.8 are very abnormal. This reading is your TSH level. "Thyroid Stimulating Hormone" My TSH was 5.9.
My doctor that diagnosed us is an Endocrinologist. Both of us were put on the typical medication, Synthroid. We started taking a lower dose and had labs done every 6 weeks to check the TSH level before increasing the dose. I also had to take a
T-4 medication for year.
My daughter and I began to improved drastically in a couple of months.
I hope this helps you!
Take care!❤️

Here are a couple of resources for you regarding thyroid disease: Isabella Wentz and Dr Alan Christensen. Both are experts. Isabella is a pharmacist that has thyroid disease herself and has become extremely knowledgeable about it. Doctor C is a doctor who also specializes in it. Both offer free information on thyroid disease. Your TSH levels in the fives is completely unacceptable, in my opinion -you should be under two, I believe. I have been dealing with hypothyroidism for 30 years. I have had to go gluten-free, soy free and certain oils free. Also, I have just discovered that hypothyroidism can lead to osteoporosis, which I now have. Keep fighting for your health, and there are experts that will listen to you and help you.

You are so correct in your assessment. Your TSH is too high and should be where you have found equilibrium. You can check your current insurance list of Drs in your area and see their 1-5 star ratings by doing a search with the Drs name.

Just google “doctors ratings” and a bunch of sites will come up.

If i were you I would try very hard to get another doctor, your tsh is slightly too high for a normal person but for you it is giving you bad symptoms. I would take more Levothyrozine to get that tsh down and I would seriously eat the AIP diet.

I go to a natropathis doctor having had Hashimoto"s for 32 years natural thyroid medicine at most compounding pharmacies ,was the only way to keep my Tsh under 2 and my t.4 in the low normal