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EMG Results and Epirdural Shot question

Spine Health | Last Active: Aug 22, 2023 | Replies (41)

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@gently

nemo1, you wisely keep insisting on a dx. Without the testing we investigate on our own and can't anything out. The doctor suggesting the spinal tap may have had a differential diagnosis of some type of demylineating process. If you are retrieving medical records, asking for the "doctor's notes" might reveal their thinking.
The MRI would show greatly thickened nerve roots with CIPD. A friend was diagnosed several years ago and has been helped by Hizentra. The link can locate the closest diagnostitian. There is also a video outlining the path to diagnosis. https://www.gbs-cidp.org/support/centers-of-excellence/?utm_source=google&utm_medium=cpc&gclid=Cj0KCQiAnrOtBhDIARIsAFsSe50ia-0YfTWHAZXpZbI3RifeGwrUHCC2k2CT9VeNPQhRKm_fUxIhgeEaAvG3EALw_wcB

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Replies to "nemo1, you wisely keep insisting on a dx. Without the testing we investigate on our own..."

Thank you so much for your insights and the link. I will try to get onto the pt. Portal and check out the notes again. In the notes if I’m remembering it right, she if the mri looked a particular way she would do the spinal tap. She wanted to give it 6 months on antiinflammatory diet and then see me back to do God knows what. I appreciate the help! 🙂

nemo1, I didn't have you figured for CIPD because of the MRI. I suspect it's those discs. Not only can the compress the nerve root, but they lessen the space in the facets--those little joints at the side of each vertebra where the pain nerves exit. Where pain management wanted you to have radiofrequency.
I wasn't thinking sciatica either, interesting that the injection was effective.
https://www.spine-health.com/conditions/sciatica/causes-piriformis-syndrome