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@arichards3

@dloos With respect, there is help. I worked through every speciality in my home area beginning in January '22 and stumbled into a couple of medical professionals who knew and cared just enough to start me on some treatments of supplements and vagus nerve therapy and then helped me to be accepted to Mayo Clinic Rochester. I am 67 and on Medicare and my cost to date is $300ish not including my travel to get to Minnesota. I fully implemented my Mayo plan in September '23 and today I feel better, not back to 100%, but better. There are Mayo sites in Rochester, Jacksonville FL, and Arizona. There may also be other ways to access Mayo. As Jimmy Valvano famously said "Don't give up, don't ever give up".

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Replies to "@dloos With respect, there is help. I worked through every speciality in my home area beginning..."

I’m very glad you are feeling better.
With respect..every individual has a different experience. I too, have “stumbled on” doctors and professionals of different sorts who wanted to help. The tools they had are not correct for what many, many of us are experiencing. I have days I have hope, and days I feel like giving up. The search for help can become difficult, and even impossible for some people who are too ill to keep up the fight. It should not be this hard. There should not be this much suffering.
Again, I am very glad you are doing better.
But it is insulting to imply that perhaps other people are not trying hard enough. I have been to hundreds (yes, hundreds, not a typo) of appointments over the last two years. Many people would never be able to do that. I do not fault them for “giving up”.