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Newly diagnosed with CKD (Chronic Kidney Disease) and terrified

Kidney & Bladder | Last Active: Apr 9 10:49am | Replies (77)
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@windyshores

I have had stage 3 kidney disease for years and never gave it a thought until suddenly my eGFR went from 55 to 37. What are your GFR numbers?

For me, the other kind of GFR, not based on creatinine and more reliable, is the Cystatin C, which for me remains in the low 50's.

Hydration plays a big role in GFR. Do you hydrate well before kidney blood tests?

If you have low blood pressure that can affect the GFR, as can heart function. My doc did an echocardiogram. Muscle loss can affect creatinine which is why the Cystatin C is better.

I personally would not panic over stage 3 kidney disease. Talk to your nephrologist, if you have one, about diet, hydration and other measures to keep your kidneys as healthy as possible. Avoid certain medications like NSAID's and some supplements that are processed in the kidneys.

To be honest, I didn't give stage 3 much thought until my eGFR hit the 30's, and even then, the Cystatin C was reassuring.

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nightwhisper | @nightwhisper | Jan 21 9:55am

Thank you so much for your answer.I will ask my doctor about Cystatin C test.I know I have to loose weight,about 15kg ,maybe more but I don t know the cause of my disease and that terrifies me.I imagine the worse,that could be due to something even worse.I'm depressed, I force myself to eat, I force myself to get through the day. I'm always sad and panicky, my heart is beating fast all the time and I don't know how to manage it and how to comfort myself. I'll do everything you suggest in your message and yes I hydrate well before my blood tests, that is not the reason my creatinine is going up. I am very scared.

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