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DiscussionAnyone out there with Autoimmune inner ear disease (AIED)?
Autoimmune Diseases | Last Active: Oct 31 6:20am | Replies (228)Comment receiving replies
Replies to "How much time had passed before your prednisone treatment? I was never treated with steroids or..."
Google…Auto Immune Ear Disorder or AIED and read about it. I did see an ENT and then an Otolaryngologist they both agreed steroids was where to start but then sent me to a Rheumatologist because that is who treats AIED.
We live 80 miles from Dallas and it seems like all I did was make appointments and then wait. This all started in November.
My ears fluctuate so much that my hearing aids rarely work.
Yes, if you have Cochlear Implants there is no going back so what hearing I have in that ear will be gone.
Lynne