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@dloos

How much time had passed before your prednisone treatment? I was never treated with steroids or antibiotic because there was no urgency displayed for my treatment. I waited weeks and months to get to see ENTs and specialists. I had no idea time was important because it was all new to me.
My ears were flushed....no ear wax. And then I waited and waited for my first appointment with an ENT who just put me in hearing aids. I now have tinnitus and hyperacusis and the hearing aids are almost useless because my hearing changes so much. I still have quite a lot of hearing but lots of distortion.
I think I have too much hearing to be considered for cochlear implants. Of course any surgery is concerning. What if it just makes it worse??
I think my treatment was terrible and now my options are very few.

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Replies to "How much time had passed before your prednisone treatment? I was never treated with steroids or..."

Google…Auto Immune Ear Disorder or AIED and read about it. I did see an ENT and then an Otolaryngologist they both agreed steroids was where to start but then sent me to a Rheumatologist because that is who treats AIED.
We live 80 miles from Dallas and it seems like all I did was make appointments and then wait. This all started in November.
My ears fluctuate so much that my hearing aids rarely work.
Yes, if you have Cochlear Implants there is no going back so what hearing I have in that ear will be gone.
Lynne