Hi @donnarushing55
I’m sorry you’re going through this. Even if you were comfortable with a specialists plan, second opinions are always a good idea, especially if surgery has been ruled out by one. Many net surgeons will do a debulking surgery (depending, of course, on many factors about your own personal case)
As an example, a well regarded specialist dismissed every known treatment for my husband and told him to get his affairs in order. He had already had his pnet tumor removed surgically but had a huge tumor burden in liver with a couple of lymph nodes also involved, but nowhere else. We were fortunate in that we had educated ourselves to such a degree that we knew there were viable options that she would not consider. We sought a second opinion and now 16 years later, my husband has very little disease left.
Because you feel distrustful it’s even more important to educate yourself as much as possible.
@hopeful33250 has provided some excellent resources to help with that.
Best of luck to you