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Undifferentiated Pleomorphic Sarcoma

Sarcoma | Last Active: 1 day ago | Replies (77)

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@scs23

Hello @mdurham Im sorry to hear about your diagnosis. I was diagnosed with synovial spindle cell sarcoma in my left lung in January last year. The tumor was already 10cm when we found it. I had surgery in February to remove it, and a second surgery in March to remove it again, as it had grown back to 9cm in six weeks. I started chemo and radiation within days of my second surgery, I finished those treatments in August. The chemo drugs I had were ifosfamide and doxorubicin. Scans from October looked good but scans from December showed 2 tumors in the plura of my lung and invading my chest wall, and now another tumor is growing in the soft tissue on my left side. I just started another regimen of chemo this month. This time the chemo drugs are gemzar and docetaxel. I haven't had any alternative treatments. I got my first recommendations from a sarcoma specialist at Northshore and the new chemo regimen was recommended by Mayo. Have you seen a sarcoma specialist? Or gotten a second opinion?

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Replies to "Hello @mdurham Im sorry to hear about your diagnosis. I was diagnosed with synovial spindle cell..."

Your response meant so much to me. Thank you so much you really gave me information I needed and let me say I am so sorry about what you have had to go through. It was so kind of you to tell me details about radiation and surgery and chemo and the exact names. I am going to Emory in Atlanta Georgia where they have a Sarcoma center but I also sent records to MSK and. The mayo clinic I don’t know if I’m just being overreacting and paranoid and she just trust the dogs I have because they are a very good Sarcoma center. Sometimes I complicate things by reading about other peoples and then telling my daughter thinking my doctor doesn’t know what he’s doing. You are precious to give me the information and I thank you very much and you were in my prayers.