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Undifferentiated Pleomorphic Sarcoma

Sarcoma | Last Active: 1 day ago | Replies (77)

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@mdurham

Hey, I was just diagnosed with the same thing spindle cell type and the treatment recommended because it’s in my right butt muscle is cutting out huge chunks of my butt. They didn’t recommend any radiation or chemo first and if I opt for then I’m gonna be possibly disabled and I’m 62 years old and live alone I’m already disabled from heaven mix fibrosarcoma 12 years ago and getting a giant dose of radiation which crippled me I want to see if there’s alternative treatments please I would love to talk to you and see what’s been recommended to you

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Replies to "Hey, I was just diagnosed with the same thing spindle cell type and the treatment recommended..."

Hello @mdurham Im sorry to hear about your diagnosis. I was diagnosed with synovial spindle cell sarcoma in my left lung in January last year. The tumor was already 10cm when we found it. I had surgery in February to remove it, and a second surgery in March to remove it again, as it had grown back to 9cm in six weeks. I started chemo and radiation within days of my second surgery, I finished those treatments in August. The chemo drugs I had were ifosfamide and doxorubicin. Scans from October looked good but scans from December showed 2 tumors in the plura of my lung and invading my chest wall, and now another tumor is growing in the soft tissue on my left side. I just started another regimen of chemo this month. This time the chemo drugs are gemzar and docetaxel. I haven't had any alternative treatments. I got my first recommendations from a sarcoma specialist at Northshore and the new chemo regimen was recommended by Mayo. Have you seen a sarcoma specialist? Or gotten a second opinion?