← Return to Undifferentiated Pleomorphic Sarcoma
DiscussionUndifferentiated Pleomorphic Sarcoma
Sarcoma | Last Active: 1 day ago | Replies (77)Comment receiving replies
Replies to "Hey, I was just diagnosed with the same thing spindle cell type and the treatment recommended..."
Hello @mdurham Im sorry to hear about your diagnosis. I was diagnosed with synovial spindle cell sarcoma in my left lung in January last year. The tumor was already 10cm when we found it. I had surgery in February to remove it, and a second surgery in March to remove it again, as it had grown back to 9cm in six weeks. I started chemo and radiation within days of my second surgery, I finished those treatments in August. The chemo drugs I had were ifosfamide and doxorubicin. Scans from October looked good but scans from December showed 2 tumors in the plura of my lung and invading my chest wall, and now another tumor is growing in the soft tissue on my left side. I just started another regimen of chemo this month. This time the chemo drugs are gemzar and docetaxel. I haven't had any alternative treatments. I got my first recommendations from a sarcoma specialist at Northshore and the new chemo regimen was recommended by Mayo. Have you seen a sarcoma specialist? Or gotten a second opinion?