PMR seems like it is very hard to diagnose. I'm not sure where you are located, but have you tried getting an appointment with a well known hospital, like Mayo Clinic, University of Pennsylvania Hospital (UPenn - Perelman Center), etc.? I just had my appointment at UPenn. It did take 6 1/2 months to get one at the time, however, it seems other people have gotten an appointment within 2 weeks. The doctor I had was wonderful, and very open minded. He is exploring every possibility with my symptoms and sending me to different departments within the hospital, further extensive testing, recommended aqua therapy, etc. He was probably one of the best doctors I have been to and also has access to explore various options.