I began having symptoms at 54. Of course I didn't know it at the time but it was PMR. Weeks went by numerous doctors couldn't pinpoint it. Then symptoms of GCA started. Still no diagnosis. I was sent to Infectious diseases. He gave me a physical and took more blood. It was at this point I decided to start my own investigation. I found a 50 something year old in the UK who had a blog. Everything he said pointed to my symptoms. It was around this time I started seeing double and had black dots in my vision. I also had severe depression. The next day I called the doctor and asked him if he had ever heard of giant cell arteritis. He laughed a little and said that was the first thing he thought of when he saw me, but you're way too young to have it. I asked if I could be tested for it and he said he would call me right back. After speaking to a rheumatologist he sent me to the drugstore to get prednisone and told me to take it right away. The rheumatologist told him that she thought that I had giant cell arthritis and I was in jeopardy of losing my eyesight. The next day I was taken in for a biopsy which confirmed what I had suspected. My PMR went away almost immediately but I had GCA for 4 years, with a relapse. I took my last shot of Actemra Nov 14, 2021. Yes, a day I'll never forget.