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Has anyone been diagnosed with GFAP
Autoimmune Diseases | Last Active: Oct 26 3:57pm | Replies (61)Comment receiving replies
I live in South California. My father is treating at China. He is the second patient that diagnosed with GFAP in the hospital. The last one died of lymphoma one year after leaving the hospital. My father is incontinent, his limbs are weak and he cannot walk by himself. After testament, he can walk a few steps. My father is taking Prednisone Acetate Tablets and Mycophenolate Mofetil Dispersibe Tablets. Taking these, he has risk of lymphoma and other malignancies. I don’t want the same thing happen to him. I try to find a better treatment plan for him in USA. What kind of prescription are you taking?
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My husbands treatment was Prednisone and mycophenolate also. He is not on any treatment now.
He was started with 70mg of Prednisone which was tapered down by 10mg eac h month. He had to go off the mycophenolate because his liver enzymes became much to high. He continued on the Prednisone taper for about 8 months then was off. His A1C got high from the prednisone and his spine is in bad shape. Stenosis and other issues. Not sure if the meds gave him those issues.
So far he is able to walk and function. He not able to do much as his balance isn’t very good. He is 74 years old.
My heart goes out to you especially if he is in China and you are here. You probably are feeling so helpless.
Keep strong.