@gman007- My GP did not mention this, but through my research I came to a better understanding of how as we age the natural form og CoQ10 is depleted and much more so with the use of statin drugs. I highly recommend using it and there are many forms out there, especially on the price point. I purchase most of my suppements through a USA based facility called Stop Aging Now. I take Max-Q10 Ultra PQQ which contains 200 mg of CoQ10 as ubiquinone, 200 mg of L-carnitine, 100 mg of Omega-3 complex, 50 mg of Trans-resveratrol , 10 mg of Pymoloquinoline, 5 mg of black pepper. Sounds like a lot of stuff, but has really made a difference with my PN. I also take Tumeric.

I appreciate your not wanting a heart attack, but as I look back now at my need for statins, there are times I almost wish I would have died than to have to live with the constant pain of neuropathy that I believe that statins caused me. My doctor told me " don't expect this to go away."

Chipper, I am sorry you have to deal with this. Hopefully at some point you will feel a little better. About a year after stopping statins, I could walk without a lot of pain. I take a low dose of lyrica which helps too.

With so many millions of people who suffer from this painful neuropathy, you would think that some doctor would find something that works. We have been to around 18 doctors and all that is offered is pain medication. With lots and lots of research, you will find that the pain medication only works for a while and even the largest dosage soon does not stop the pain. I have found some statements on the internet that the pain medication, while helping some with the pain, will many time make the condition worse. I really believe that when something is found to stop this pain and really help this condition, it will be something to do with nutrition. Doctors are not trained in the field of nutrition and know absolutely nothing about eating right and taking vitamins. Our doctors will not even talk with us about nutrition. I spend 20 to 40 hours per week doing research. I can understand your pain because I watch the one I love hurt so badly all the time. I am determined to research and keep trying things to "rule out" until I find something that will help. I feel alone most of the time because the doctors will not help me. When I ask for a test to be ordered, many times they laugh at me and just refuse. If I do find anything that works or helps, I will be sure to post and hope all of you post anything that helps you. Wishing you the best, Chipper.

"The protocol works" is a group of vitamins and supplements that are getting very positive results reducing pain by regenerating nerves, for a lot of people, according to their internet comments. I am currently taking these with some improvement. Check it out, they have a very active internet group. Items can be ordered at http://www.solutions2pnpd.com/products

@ealanddtc

I've never had a doctor laugh at me or flat out refused to order a test. My doctors have respected me done all they could to help me. I'm sorry if that hasn't been your experience.

I've never brought up the question of dietary solutions, but I'm going to put it on my Evernote list, and see what they have to say.

Jim

I agree with you. I tried three different kinds of statins and each one was worse than the other. Muscel spasms, joint pain, and with Livalo I also ended up with neuropathy. I will not take another statin.

I have peripheral neuropathy in both feet, R foot is the worst and It's getting worse, especially when driving and at night. I have researched this, since the cause is unknown. I had taken statin drugs for over 20 twenty years and it seems there have been many studies done that show a relationship between statins and neuropathy. Can't get any answers from doctors and I'm staying off of most meds that have awful side effects like Gabapentin. All the doctors I've seen just brush it off and only try to give me meds for pain which I won't take because of side effects. About 5 years ago I was diagnosed with diabetes 2, just out of the blue. Nobody in my family ever had it & I had no symptoms. I read that statins can cause diabetes. I went off the statins and some months later doctor said I no longer have diabetes. Now, my cholesterol is fine, no diabetes but have peripheral neuropathy and a rare blood disorder. Now I am trying to find out if the blood disease is related to the neuropathy. The pain & numbness is getting worse. I'm feeling that one day I won't be able to drive, but even worse, walking might be difficult. I have read that statins are overprescribed, about 15 million Americans take them and new guidelines propose 13 million more patients may be prescribed statins as a preventative measure. This makes me wonder......................

Had my GP overprescibe a statin that had my cholesterol well under control attempting to lower my triglycerides and a year later was in the same boat as you. Got off the statin but too late , have neuropathy in both feet that seems to be a life time issue. Have found nothing that works to ease the pain, good luck finding any help from the medical community. They just tell you it's permanent.