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Looking for people who can relate to AS

Posted by MarineMamma @marinemamma, Apr 12, 2012

I am a 41 year old woman who is suffering from AS, I have no one to talk to about this (other than my rumatologist) and would love to chat with ppl who can relate to all of the changes happening.

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Zina | @zina | Dec 27, 2012
In reply to @1bbygyrll "Hey- I know its been a while since ur post... But I am hopeful that u..." + (show)
@1bbygyrll

Hey- I know its been a while since ur post... But I am hopeful that u can shed some lite on the subject of AS, your symptoms & how u got diagnosed. I ask because I am 37 yr old female who's been in&outta Dr offices since as far back as I can remember for (mainly) left sided pain issues (that are now seeming to move into my right side).... Had Xrays, MRIs, &a CT that- showed (among other 'minor' things') "sacriolitis(?)" in left lower back/hip... Was told to see yet another Dr for this... But- frankly, I cant really afford another Dr bill that ends in "possible fibromyalgia" (which I don't much believe in)... Googling "sacriolitis" tho- brought me to AS and- am amazed to see that this could explain everything- from the excruciating pain to the eye & intestinal issues Ive been also experiencing....
Sorry for the "book"- I'm just so frustrated w/ the pain & have (sadly) become rather skeptical of doctors and their actual 'desire' to find the problem for me:/
Does any of this seem familiar?
Thanx for ur time;)- any suggestions would be greatly appreciated:)))

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Hi,
Your Dr. can have a simple blood test to test for the HLA-B27 antigen. That should help with confirmation and not be too expensive.

REPLY
Zina | @zina | Dec 27, 2012
In reply to @noramesfer "I can relate. I am 22 and have AS. My family is trying to help but..." + (show)
@noramesfer

I can relate. I am 22 and have AS. My family is trying to help but they just don't understand. So yes I can relate to you.

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Nora,
Try this website and maybe get there info sent to you.
http://www.spondylitis.org/about/as.aspx

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