Born with spina bifida

Posted by talha @talha, Jun 22, 2020

Hi everyone ,I have a baby she was born with spinal befida nd hydrocephalus.spinal was repaired bt still she can't sit by herself. No theraphy to take her to

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@amandaa

Hi @talha
Yes, living so far away does pose a challenge during this pandemic. I am not 100% sure if Mayo provides this for international patients and pediatrics, but they do have telemedicine appointments. It might be worth giving them a call to see if they can accommodate that for you. Here is a recent article about their telemedicine program.
https://newsnetwork.mayoclinic.org/discussion/how-video-appointments-are-changing-the-way-mayo-clinic-patients-receive-care/

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@talha . I didn't read Amanda's reply to you about telemedicine if they do that sounds great for you .

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@lioness

@talha How old is your baby? Is it possible to see a neurosurgeon ? They maybe able to help you? If you type in spinal bifida there is a lot of information online that might help . Treatment early is important for her . I knew a lady who,s child had this and getting in a pool helped her . So they had a pool put in there house and she taught swimming to kids in her home If you can go online to Mayo connect look for a link for this to get information you can use now try to get a appointment I guess Jacksonville ,Fla would be your closest ,not sure exactly where you live . Let us know we care here on connect .

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@lioness my baby is 12month old now,I would love to get d link to see how I can get help from d lady who got his child in pool to train,I did see a neourosagant bt only rapaired d spinal nothing else rapairings means to close d open wound to not b infected .nothing more they did to her.and I live in Africa (Swaziland) so am too far bt need help

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@lioness

@talha . I didn't read Amanda's reply to you about telemedicine if they do that sounds great for you .

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@amanda yah it's a big challenge for me being far bt the help u can give me it would be a great help for my baby coz she is growing bt still lying down no doing anything

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@talha

@lioness my baby is 12month old now,I would love to get d link to see how I can get help from d lady who got his child in pool to train,I did see a neourosagant bt only rapaired d spinal nothing else rapairings means to close d open wound to not b infected .nothing more they did to her.and I live in Africa (Swaziland) so am too far bt need help

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@talha I don't know how to add a link here but here is the site you can go to Treatment for spinal bifada.com just put it in the search box can you do this?

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