NETs, Toilet Paper, a rant and a little humor

Posted by Angie T @terryabk, Mar 28, 2020

NET, the TP crisis, a rant and a little humor

I’m sure the irony of the TP “shortage” is not lost on most of us. As someone who experiences way too many BMs each day, and frequent diarrhea, (sorry for the TMI) my household keeps a lot of the precious paper on hand. I’m sure in this community, I’m not alone in this. I see online posts and comments complaining about shoppers purchasing more than a couple packages at a time. Large TP purchases are our normal. I’m not condoning hoarding, purchasing carts-full at a time, but please, there are some of us that honestly require an abnormal amount of bog roll.

When reports of TP shortages first began, I made a contingency plan, just in case. We have plenty of rags, old towels, etc., which I could cut into wash cloth size and utilize as an alternative. A good rinse after use, toss into a bucket and launder every day or so. Great plan, or so I thought.

A few days into our sheltering in place, my good, OLD, reliable washing machine died. So, here I am, high risk, trying to stay home and I need a washer. I’m trying to shop for one online, but finding it difficult. I REALLY want to SEE what I’m buying. Laundry is an essential chore, but I have serious lung issues and am already on supplemental oxygen. Laundromats are not an option right now. My daughter comes to the rescue though and offers drop off laundry services at her home. She’s working from home now and can throw in our loads while she’s working. What a huge help. I haven’t asked her yet if she’s willing to wash our reusable butt wipes.

How are you dealing with this health crisis? Staying calm? Freaking out? Looking to humor? Praying a lot more. All of the above?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

By IV and Creatinine dropped to 1.7 from 1.48 which is more than 25%. improvement my GFR was 48 now >60.

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@gulzar

By IV and Creatinine dropped to 1.7 from 1.48 which is more than 25%. improvement my GFR was 48 now >60.

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How wonderful, @gulzar, that your medical team found a way to protect your kidneys during the MRI with contrast. I appreciate your sharing that!

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@hopeful33250

Hello @terryabk,

Your situation does sound complicated, however, I think an appointment for a second opinion at Mayo in Rochester, Minnesota might be helpful. There is a NET specialist there. Dr. Thor Halfdanarson, who is one of the best in the country. Here is a talk he gave about NETs,

Once the COVID-19 situation settles down a bit perhaps you could see him.

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Hello. Could you please share the link again. I was able to watch it yesterday but it won’t show today. Thank you

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@lusine

Hello. Could you please share the link again. I was able to watch it yesterday but it won’t show today. Thank you

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@lusine

Let's see if this works,

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My will is broke and they say idiopathic no cure ,,,,, Imflamation off the hook. Gastroparesis with gastric stimulator, pacemaker, but...... that's working fine. its like my abdomen is on fire. you name a drug and i have had it, er room over 40 times over 20 cts, blood tests, stool tests, nothing shows anything is wrong, just guess i better see a shrink. Phychiatrist.......sorry being narcisistic, i feel like just wanna dry up and blow away
thanks for reading. PEACE!

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@420july

My will is broke and they say idiopathic no cure ,,,,, Imflamation off the hook. Gastroparesis with gastric stimulator, pacemaker, but...... that's working fine. its like my abdomen is on fire. you name a drug and i have had it, er room over 40 times over 20 cts, blood tests, stool tests, nothing shows anything is wrong, just guess i better see a shrink. Phychiatrist.......sorry being narcisistic, i feel like just wanna dry up and blow away
thanks for reading. PEACE!

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Hang in there I understand your feelings.

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