Hi,
I wouldn't be surprised if they may have damaged the autonomic nerve system in the process. This can affect the digestion, bowels and bladder among other things. I got mine from a serious bout of Campylobacter and it just keeps getting more invasive thanks to T2 diabetes being "OK" for years unchecked. So far the digestive system is completely controlled with ANS from top to bottom.
Cheers
I think something happened but I’ll never find out why and I don’t care just don’t stop looking. I’ve gone through 10+ Gastro doctors and feel as soon as I say how it happened, list all the tests I’ve gone through, all I get is, you’ve had every test the only thing we do now is try to save your colon. I was scheduled twice for a colectomy and canceled as both got close. I’ve always wondered why seeing another neurologist wouldn’t be a good idea but they say I’ve had all the tests.
It was during Covid, the first scheduled surgery and surgeon asked if I’d get the Covid vaccines because I’d be in the hospital a while and Covid was bad then. I could get one July and august and surgery was September.
Prior to surgery I had the nuclear meal test for complete digestion. I passed with stomach,small bowel and large bowel emptying enough to go through surgery. I had the Covid vaccines which I was against but I did it. I canceled the surgery again because I just couldn’t agree removing my large colon was right. The surgeon was so understanding so I rebooked for January to try homeopathic medicine. Then I started having stomach problems. Took months with a new Gastro to check that test again and results less than 6 months later I failed the test severely and was diagnosed with gastroparesis. Call it a coincidence but the only thing I did differently was take the vaccine. I think it caused me to now have gastroparesis.
I was living near Boston then and Mass General had a study but because I had never been diagnosed with Covid I was unable to be in the study. It seems many were diagnosed with gastroparesis from Covid vaccine.
I just hope my colon hangs in and laxatives keep things moving at least 3 days a week if I’m lucky. I know so so many people are worse off than I so you need to get in a good place head wise, I am and vent occasionally. I love life, have been fortunate to travel when I was feeling better so things could be worse today. Have a great day everyone.
Hi,
That's my constant thought, there are others worse off than me, it helps me cope with my lot better.
With ANS it can be difficult to diagnose and especially if it is Dysautonomia which is more to the random type events. So if you are not present in such an event there is no way of telling and it comes down to being able to convey the event in terms medical staff understand and spark an incling of recognition in them, I guess seeing is believing!
It took me 12 years to convey in terms that they understood and related to, to diagnose the ANS. A great relief to have a diagnosis, short lived when I researched it and found what it involved and how so many of the symptoms I have match it. It was devatating to say the least finding this is a potential death sentance for me. With time I'm getting to grips with it and tell myself we all die anyway, so I might be a little sooner than expected.
I take Prucalopride, only 1/4 of a tablet currently, at night, which helps combine fluid with the stools. So far it only helps to make me more regular although I don't think the constipation is so bad either. I also use laxatives, at least 6 prunes per day and as much fluid as possible. I find canned peaches can help as well as does my home made tartare saurce, I just have to watch I don't go overboard or the reaction can be rapid and urgent!
Cheers
Hi,
There are no hard and fast rules with IBS, we each need to find or own way through. A good starting point is the Fodmap food list keeping a list of what works for you or dosen't. Seek the help of a good dietitian and try to stick to your diet. You soon learn that if you don't stick to your diet you are the one who pays the price.
Cheers
Good plan to try Fodmap and utilize a dietitian.
Have you been seen by a gastroenterologist and
had a scope with celiac tests.?
Gluten free diet if you don’t respond in several months
worth a try.
You should definitely consult with a gi dr as well as a nutritionist. My daughter has Ibs. Different things affect different people. Have you had a colonoscopy? Endoscopy?
metoo@graceym1, i started elimination of processed food. No sugars. Use honey. Stash licorice tea. Heating pad. Hot baths. Epsom salts bath. Oatmeal. Eggs, fish, poultry white meat. Sweet potatoes, squash.yellow w a couple brown spots are good for IBS-C. & green bananas for IBS- D. Senokot gentle laxative. What works for me may not work for you.
If you're w diarrhea you don't wanna eat many fruits & veggies. Can you drink juices? Replace fruits?
IBS-C I stopped nuts, seeds, popcorn. Tested negative for food allergies? I did.
I understand fermented food as yogurt, sauerkraut are suppose to be good.
If you're w diarrhea you don't wanna eat many fruits & veggies. Can you drink juices? Replace fruits?
IBS-C I stopped nuts, seeds, popcorn. Tested negative for food allergies? I did.
I understand fermented food as yogurt, sauerkraut are suppose to be good.
Hi,
I wouldn't be surprised if they may have damaged the autonomic nerve system in the process. This can affect the digestion, bowels and bladder among other things. I got mine from a serious bout of Campylobacter and it just keeps getting more invasive thanks to T2 diabetes being "OK" for years unchecked. So far the digestive system is completely controlled with ANS from top to bottom.
Cheers
I think something happened but I’ll never find out why and I don’t care just don’t stop looking. I’ve gone through 10+ Gastro doctors and feel as soon as I say how it happened, list all the tests I’ve gone through, all I get is, you’ve had every test the only thing we do now is try to save your colon. I was scheduled twice for a colectomy and canceled as both got close. I’ve always wondered why seeing another neurologist wouldn’t be a good idea but they say I’ve had all the tests.
It was during Covid, the first scheduled surgery and surgeon asked if I’d get the Covid vaccines because I’d be in the hospital a while and Covid was bad then. I could get one July and august and surgery was September.
Prior to surgery I had the nuclear meal test for complete digestion. I passed with stomach,small bowel and large bowel emptying enough to go through surgery. I had the Covid vaccines which I was against but I did it. I canceled the surgery again because I just couldn’t agree removing my large colon was right. The surgeon was so understanding so I rebooked for January to try homeopathic medicine. Then I started having stomach problems. Took months with a new Gastro to check that test again and results less than 6 months later I failed the test severely and was diagnosed with gastroparesis. Call it a coincidence but the only thing I did differently was take the vaccine. I think it caused me to now have gastroparesis.
I was living near Boston then and Mass General had a study but because I had never been diagnosed with Covid I was unable to be in the study. It seems many were diagnosed with gastroparesis from Covid vaccine.
I just hope my colon hangs in and laxatives keep things moving at least 3 days a week if I’m lucky. I know so so many people are worse off than I so you need to get in a good place head wise, I am and vent occasionally. I love life, have been fortunate to travel when I was feeling better so things could be worse today. Have a great day everyone.
Hi,
That's my constant thought, there are others worse off than me, it helps me cope with my lot better.
With ANS it can be difficult to diagnose and especially if it is Dysautonomia which is more to the random type events. So if you are not present in such an event there is no way of telling and it comes down to being able to convey the event in terms medical staff understand and spark an incling of recognition in them, I guess seeing is believing!
It took me 12 years to convey in terms that they understood and related to, to diagnose the ANS. A great relief to have a diagnosis, short lived when I researched it and found what it involved and how so many of the symptoms I have match it. It was devatating to say the least finding this is a potential death sentance for me. With time I'm getting to grips with it and tell myself we all die anyway, so I might be a little sooner than expected.
I take Prucalopride, only 1/4 of a tablet currently, at night, which helps combine fluid with the stools. So far it only helps to make me more regular although I don't think the constipation is so bad either. I also use laxatives, at least 6 prunes per day and as much fluid as possible. I find canned peaches can help as well as does my home made tartare saurce, I just have to watch I don't go overboard or the reaction can be rapid and urgent!
Cheers
Should I stop eating gluton? What meal plan would help me
Hi,
There are no hard and fast rules with IBS, we each need to find or own way through. A good starting point is the Fodmap food list keeping a list of what works for you or dosen't. Seek the help of a good dietitian and try to stick to your diet. You soon learn that if you don't stick to your diet you are the one who pays the price.
Cheers
Good plan to try Fodmap and utilize a dietitian.
Have you been seen by a gastroenterologist and
had a scope with celiac tests.?
Gluten free diet if you don’t respond in several months
worth a try.
You should definitely consult with a gi dr as well as a nutritionist. My daughter has Ibs. Different things affect different people. Have you had a colonoscopy? Endoscopy?
metoo@graceym1, i started elimination of processed food. No sugars. Use honey. Stash licorice tea. Heating pad. Hot baths. Epsom salts bath. Oatmeal. Eggs, fish, poultry white meat. Sweet potatoes, squash.yellow w a couple brown spots are good for IBS-C. & green bananas for IBS- D. Senokot gentle laxative. What works for me may not work for you.
If you're w diarrhea you don't wanna eat many fruits & veggies. Can you drink juices? Replace fruits?
IBS-C I stopped nuts, seeds, popcorn. Tested negative for food allergies? I did.
I understand fermented food as yogurt, sauerkraut are suppose to be good.
STOP Sent from my Bell Samsung device over Canada's largest network.