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Transplants

This group is for people interested in Transplants. Join the discussion! Post your question, share your story, or just say hello to the rest of the group via the "What would you like to say?" box below. You can also view ongoing discussions by selecting the "Search Discussions" tab or find other helpful links under "Resources."

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Linda M. (@lmarcellus) posted in Transplants · Mon, Jul 21 10:10am · View  

My husband has PLD (polycystic liver disease) with an extremely enlarged liver that Mayo said he needed a transplant from a living donor. He had a successful kidney transplant 4 years ago and was in great health 5 weeks ago rapelling down into water and zip-lining on our vacation. He got infections and now his liver is much larger than it was 5 weeks ago. He went from wearing size 34 waist pants to looking like he is 6 months pregnant and in severe pain and not having room to eat. How can the liver enlarge so fast?

Margaret Shepard (@margieshepard) responded:

Hi, @Linda M.. I'm sorry to hear about your husband. Here's some information on an enlarged liver that may be helpful for you: http://www.mayoclinic.org/diseases-conditions/enlarged-liver/basics/definition/con-20024769.

Posted Mon, Jul 21 at 7:29am CDT · View

Linda M. (@lmarcellus) responded:

Thank you for the information. Mayo has since diagnosed him with disseminated histoplasmosis causing the enlargement and he is here getting IV medication. It is pretty serious having this fungal infection in addition to suppressed immunity, PLD, and transplanted kidney. Thanks again.

Posted Mon, Jul 21 at 10:10am CDT · View
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Rick (@lastdaze04) posted in Transplants · Sat, Jul 19 11:38am · View  

Hello All: My name is Rick Richards I have come to a crossing point in my life, one I knew that was going to come but not this quick. I have a question if it in the wrong forum please direct to the correct one.
I need a Kidney transplant (Kidney forum??) But my Dr said that it will not happen because I am too old and a Type 2 Diabetic. Is that true? I am 55 years old, only slightly over weight 206lbs and I am 6ft tall and very active, meaning I assist in the care of my four grandsons, and I have the biggest paycheck. The thought of going on Dialysis, scares the crap out of me an I love my job I am at, The thought of going on disability is abhorring, I would rather go end it all. Someone please tell me that my Dr is wrong. I already have 3 family members lined up to see if they are compatible matches. These are my immediate questions at the moment, I have a ton more in my mind, I look forward to your response.
Thanks
Rick

Rick (@lastdaze04) responded:

Hi Margaret: I thank-you for your help. Are you a nurse or a DR at the Mayo Clinic? I had Dr Leibovich do a complete Radical Nephrectomy on my left side 13 years ago. I see he is still practicing at Mayo. I will look up all the info that I can, yours included. I am still in shock and its still hard to take. I feel for the 1st time in my life that [...]

Posted Sat, Jul 19 at 12:32am CDT · View

Kristin (@keggebraaten) responded:

Hi, @Rick, I work with the physicians in the Kidney Transplant Program at Mayo Clinic in Minnesota. I think I can help you further with your situation. If you are interested in more information, please send me an email at transplant-rst@mayo.edu. I would love to hear from you and can reply with more information on Monday. Thanks!

Posted Sat, Jul 19 at 11:38am CDT · View
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Dawngryder (@dawngryder) posted in Transplants · Fri, Jul 11 8:25am · View  

My niece is 22 and has Cystic Fibrosis. She has been evaluated for the transplant list and so far the primary hospital won't list her, as she has what sounds like the same situation the young man in your story has..abnormal tissue growing around her port that occluded then SVC, creating collateral vessels. The doctors say her survival rate is low for the transplant surgery because of this finding. They are looking to other hospitals that perform high risk transplants. In the meantime, we wait and her lung functions drop. Waiting is hard on the transplant list, I can imagine..waiting to hear you can be listed, is even harder. We as a family, are looking for some guidance, some advice, other than waiting. Someone has to have some idea that would give her hope! She deserves a chance to
breathe easy!

Margaret Shepard (@margieshepard) responded:

Hi, @Dawngryder. Thank you for your post. Here's a link to information on lifestyle and home remedies for Cystic Fibrosis, also some information on coping and support: http://www.mayoclinic.org/diseases-conditions/cystic-fibrosis/basics/lifestyle-home-remedies/con-20013731. Does anyone else have some guidance for Dawn?

Posted Fri, Jul 11 at 8:24am CDT · View
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Margaret Shepard (@margieshepard) posted in Transplants · Mon, Jun 16 1:43pm · View  

Last winter, David Costello's double organ transplant saved his life. This year, the Costellos' hope is for the phone to ring again bringing a liver transplant to a family in need of one more gift of life.

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charba1 (@charba1) posted in Transplants · Thu, May 29 8:04pm · View  

knee replacement

Does anyone know what can be done when a knee freezes up after knee replacement surgery?

sophia (@sophiadelgado) responded:

How long did u wait

Posted Thu, May 29 at 11:35am CDT · View

Rosemary A (@rosemarya) responded:

I waited 5 1/2 months after I was listed. Waiting times are different for everyone. Organs are very carefully matched to a recipient. So the waiting time is needed for the best organ to become available for you that "matches" you. I have met people who have waited less time than me, and I have met people who have waited more time than me. Be patient, and trust that one will be available when you [...]

Posted Thu, May 29 at 8:04pm CDT · View
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Margaret Shepard (@margieshepard) posted in Transplants · Wed, May 7 9:52am · View  

New research shows advancement in diabetic kidney transplant. The study results report "the five-year survival of diabetic kidney transplant patients is now on par with the five-year survival of nondiabetic kidney recipients."

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Margaret Shepard (@margieshepard) posted in Transplants · Thu, May 1 10:13am · View  

After being diagnosed with a rare liver disease in November 2013, Pressley Cochran-Bray is resting after receiving a successful liver transplant. Read more about her inspiring story in the Dickinson County News.

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Margaret Shepard (@margieshepard) posted in Transplants · Thu, Apr 24 10:50am · View  

Do you think you're too old to be a donor? Think again! Sally Jacobson's life was saved when she received a liver transplant from a much older donor. Read more about Sally Jacobson's story and the importance of organ donors in this Grand Forks Herald article.

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