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Just would like to say hello. I recieved a heart transplant 5/23/12. I jow am doing great. I am currently in school for my degree in hilling n coding. If anyone needs an ear or someone to write I am here for you. I know that if it was not for the person who also had a heart transplant be introduced to me I would have felt lost. I wish you luck and pray everyday for the people who are on the list. God bless. Jennifer
I am a 60 year old female who is an 18-month survivor of back-to-back cardiac arrests in June, 2012. I had two failed stents, and subsequently received an AICD placement thru Austin Heart Hospital in September, 2012. Progress was slow but steady. For an individual who was deprived of O2 for 7 and 17 minutes, I have remarkable function despite reliance on just ONE viable vessel (LAD), stented. I have COPD, CHF and now digestive issues because of all the crowding in the chest cavity. But my biggest problem is "lead legs" from the hip down - walking has been reduced to shuffling, and I try at least once a week to get behind my self-propelled lawn mower and have it pull me around the yard for at least 20 minutes. However, my arms start hurting, then my chest, and my legs tingle for hours! My feet respond negatively to stepping on something as minor as a small pebble or twig; I have a tendency to trip and fall easily. Complicating factors - diabetes, fibromyalgia, neurovascular issues, degenerative disc disease, and of course, peripheral artery disease. Would love to know more about how to restore part of the vitality I was accustomed to prior to my heart attacks. I weigh about 125 lbs now, have fullness in the chest and lungs from the size/weight of an 8" balloon heart resting on everything in there - I asked about a transplant in Austin, was told I needed a PET scan - but there aren't any in Austin!! Unbelievable to me. I really feel like I would benefit from a heart transplant. Have lots to live for, just want some encouragement and positive feedback. Thanks.
Just wondering if there is anyone who has had a liver transplant at the Mayo Clinic in Jacksonville , Florida ?
My mother is waiting for new lungs. So far, Mayo has been awesome. But she is sick now. Her advocate(don't know what his official title is) is telling her that her local doctor needs to treat her. That has not been the case before now. And I don't believe that her local doctor is giving her the antibiotics that she truly needs. At what point or how sick does she need to be before her "advocate" will help? And about a week ago when she called him b/c she was getting sick, a nurse finally called my mom back & said they had tried to call her 3 times the day before but got no answer. However, my mom says the phone never rang...........
very frustrated & not sure how to handle this!
0 replies · Last response: Nov 3, 2013 by Jennifer Gray
4 replies · Last response: Oct 30, 2013 by Kristin
2 replies · Last response: Dec 8, 2012 by Sarah E
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