Transplants

This group is for people interested in transplants. Join the discussion! Post your question, share your story, or just say hello and introduce yourself.

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charba1

Jul 23, 2011 by charba1 in Transplants · View  

Pancreas and Kidney transplant - share experiences

Does anyone know 

Edited: 01/29/2016 @ 8:47am

sandras

sandras responded Mon, Feb 1 at 12:12am CST · View

Oh so sorry. To. Here. That

sandras

sandras responded Tue, Feb 2 at 2:10pm CST · View

Hi, I waited for a year and also had many calls. It is frustrating but hang in there! I personally know what is is like to wait.

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bobbutler

Jan 12, 2015 by bobbutler in Transplants · View  

How do I get on multiple transplant lists for a liver?

I have been added to the transplant list for a liver at Yale new haven. I understand I can get on other list in other parts of the country. How do I go about this?

Edited: 01/13/2016 @ 9:51am

LaurenSpiceland

LaurenSpiceland responded Tue, Jan 19 at 11:37am CST · View

Hey Bob, here are a couple links that explain organ allocation and multiple listing really well: https://www.unos.org/wp-content/uploads/unos/Multiple_Listing.pdf and https://optn.transplant.hrsa.gov/learn/about-transplantation/how-organ-allocation-works/. You can view the average waiting times for different regions here: https://optn.transplant.hrsa.gov/converge/latestData/stateData.asp?type=region. The average preservation time for a liver is 8-12 hours, so that could make it difficult to receive a liver from a transplant center that is a great distance from your home. To be added to the list at another transplant center, you have [...]

sandras

sandras responded Sun, Jan 31 at 10:41pm CST · View

Agreed!

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er1nel1zabeth

Jan 20, 2015 by er1nel1zabeth in Transplants · View  

Why doesn't Mayo in FL currently perform living donor liver transplant?

Why doesn't FL currently perform living donor liver transplant and any plans on horizon to start?

Edited: 01/13/2016 @ 9:46am

LaurenSpiceland

LaurenSpiceland responded Fri, Jan 29 at 3:15pm CST · View

While transplant from a living donor is an excellent alternative to a deceased donor, each procedure comes with certain risks: http://www.mayoclinic.org/tests-procedures/liver-transplant/basics/risks/prc-20014076. The risks of living donation should be weighed against the risk of waiting for a matching organ from a deceased donor. Mayo Clinic Florida is in a region of the country that is fortunate to have a higher rate of liver grafts from deceased donors compared to other regions of the country. As a [...]

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Shawngbishop

Dec 9, 2015 by Shawngbishop in Transplants · View  

Bone Marrow Failure and Bone Marrow Transplantation

On Wednesday, Jan. 20 at Noon CT, Mayo Clinic will host an interactive webinar on bone marrow failure and bone marrow transplantation for adult and pediatric patients. Shakila Khan, M.D., Chair of Pediatric Hematology-Oncology and Director of the Pediatric Bone Marrow Transplant Program, Vilmarie Rodriguez, M.D., Associate Director of the Pediatric Bone Marrow Transplant Program, and Mrinal Patnaik, M.B.B.S., Assistant Professor of Medicine and Oncology, will discuss bone marrow failure symptoms, diagnosis, and treatment options, including bone marrow transplantation. A live question and answer session will follow the presentation. Sign up for the webinar now to receive email reminders and post questions for the doctors.

Register Here

Would you like to:

Learn more about bone marrow transplant

Schedule your appointment

Edited: 01/29/2016 @ 8:37am

LaurenSpiceland

LaurenSpiceland responded Fri, Jan 29 at 8:46am CST · View

Hi @amywilcox, here is a response from our physicians: Infusing more of your daughter's cells would be done through donor lymphocyte infusion, or DLI, which is performed if there is concern for graft rejection or early relapse. Without knowing the exact details of your son's case it is difficult to say, but if he has donor cells DLI could be considered.

LaurenSpiceland

LaurenSpiceland responded Fri, Jan 29 at 8:49am CST · View

Hello, here is a response from our physicians: We are still learning about telomeres. They are important in cancer, aging, response to drugs, etc. Shortened telomeres are on the chromosomes, so they are technically in the whole body. Patients with aplastic anemia don’t respond well to immunosuppression and are more sensitive to transplant conditioning, but do fine with reduced-intensity conditioning.

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celliott

Wed, Jan 20 at 10:21am CST by celliott in Transplants · View  

Live Webinar today: Bone Marrow Failure and Bone Marrow Transplantation

WED. JAN 20, 2016 AT 12:00 PM CST
Join us for an interactive webinar on bone marrow failure and bone marrow transplantation for adult and pediatric patients. Shakila Khan, M.D., Chair of Pediatric Hematology-Oncology and Director of the Pediatric Bone Marrow Transplant Program, Vilmarie Rodriguez, M.D., Associate Director of the Pediatric Bone Marrow Transplant Program, and Mrinal Patnaik, M.B.B.S., Assistant Professor of Medicine and Oncology, will discuss bone marrow failure symptoms, diagnosis, and treatment options, including bone marrow transplantation. A live question and answer session will follow the presentation. Sign up for the webinar now to receive email reminders and post questions for the doctors.

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gregorytremblay

Apr 11, 2015 by gregorytremblay in Transplants · View  

I am an Anon Kidney Donor - wonderful decision

I am an Anon Kidney Donor, and will offer advise to verify that I made a wonderful decision to donate.

Edited: 01/13/2016 @ 9:45am

colleen_young

colleen_young responded Wed, Jan 13 at 5:22pm CST · View

Good for you! That's one of best "why I quit smoking" storied I've heard yet. When do you donate your kidney and how long was the recovery period?

gregorytremblay

gregorytremblay responded Wed, Jan 13 at 5:32pm CST · View

Confidential on where and when. Sorry. I have to guess as to the recovery time as I am retired and required regular pain medications for years, so I don't have actual dates to refer to. To return to the career I had before my accident, I think about 2 months. That is a long estimate, as I needed to be very agile in that job. If it helps, I was fine being alone after returning [...]

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nancyligon

Jun 30, 2015 by nancyligon in Transplants · View  

I was Dxed with IPF 2014.

Hello All. My name is Nancy. I was Dxed with IPF 2014. I know am going to go thru the process of being placed on transplant list . I am hoping I can get advice from the get go on this .Afraid and stupid and otherwise in good health ( end stage lung disease in right lung) 61... Help. What can I expect?

Edited: 01/11/2016 @ 8:11am

colleen_young

colleen_young responded Wed, Jan 13 at 9:37am CST · View

Hi @nancyligon, I'm the new Community Director on Connect and am catching up on some conversations. If you would like to connect with other people with pulmonary fibrosis meet @mairi and others on this discussion thread: http://connect.mayoclinic.org/discussion/pulmonary-fibrosis/ Are you on the transplant list? How are you doing?

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magrand48

Sep 8, 2015 by magrand48 in Transplants · View  

I had a Liver transplant 5 years ago

I have had a had a Liver transplant 5 years ago and now need a kidney transplant. I have no, repeat no energy. Should I expect an energy boost from the kidney transplant? Anyone else have both transplants?

Edited: 01/11/2016 @ 8:10am

colleen_young

colleen_young responded Wed, Jan 13 at 9:24am CST · View

Hi @magrand48, Connect members @rosemarya and @wmoser2613 had both a liver and kidner transplant. You can connect with them on this thread http://connect.mayoclinic.org/discussion/liver-transplant-for-primary-biliary-cirrhosis-pbc/ How are you doing today? Are you waiting for a kidney transplant? Colleen Young Connect Community Director

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kariulrich

Aug 26, 2011 by kariulrich in Transplants · View  

Liver Transplant for Primary biliary cirrhosis (PBC)

Would like to hear from anyone who has been through a liver transplant. Both donor and recipient. Thank you- Kari Ulrich

surfah00

surfah00 responded Oct 16, 2013 · View

My mother had a liver transplant in 1996 at VANDERBILT hospital in Tennessee.

deeann

deeann responded Sep 12, 2015 · View

How tough was it on your son and how long was his recovery? What state?

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user_chcbc919c

Sat, Jan 9 at 2:41pm CST by user_chcbc919c in Transplants · View  

On hold for liver transplant

Am at Barnes on hold for liver.supp to be#/1 but not hearing a word. 

Edited: 01/13/2016 @ 8:31am

user_chcbc919c

user_chcbc919c responded Mon, Jan 11 at 12:09pm CST · View

no my son is preparing for liver transplant and he is trying to get over flu but he will need a  liver very soon and his score is 32 and high on the list. He is in barnes but hopefully can acquire a liver any where in U. S. or close enough to transport a liver in time to Barnes. What reccomendations do you have for this case?

Edited: 01/13/2016 @ 8:31am

colleen_young

colleen_young responded Wed, Jan 13 at 8:52am CST · View

It is difficult to watch our children suffer. I hope your son beats the flu soon, and more importantly, gets the call asap for a liver that he and your family are desperately waiting for. My thoughts are with you. It is impossible to comment on specific cases here on this forum. But if you would like to speak to someone at Mayo Clinic in Rochester, Minn, you can contact our liver transplant program at [...]

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Shawngbishop

Jun 9, 2015 by Shawngbishop in Transplants · View  

What Patients Need to Know About Hilar Cholangiocarcinoma and Liver Transplant

On Tuesday, Aug. 11 at Noon CT, Mayo Clinic will host an interactive webinar on hilar cholangiocarcinoma (cancer of the bile ducts). Julie Heimbach, MD, Liver Transplant Program Surgical Director, and Sumera Rizvi, MBBS, Gastroenterology and Hepatology Fellow, will discuss hilar cholangiocarcinoma symptoms, diagnosis, and treatment options, including liver transplantation. A live question and answer session will follow the presentation.

Would you like to:

Request An Appointment

Learn More About Bile Duct Cancer

Edited: 08/11/2015 @ 9:23am

liljeanie

liljeanie responded Nov 3, 2015 · View

Should I have an ERCP to see if I have cancer? IMPRESSION: 1. Findings within the liver and biliary tree consistent with patient's history of primary sclerosing cholangitis. There is enhancement and thickening of the biliary tree in the hilar region. Cholangiocarcinoma cannot be excluded. 2. Prominent periportal lymph nodes. DISCUSSION: Abdominal MRCP performed before and after the intravenous administration of 14 mL MultiHance. Comparison is made to CT dated 12/22/2010. Indication is PSC. Imaging [...]

LaurenSpiceland

LaurenSpiceland responded Nov 4, 2015 · View

Our doctors are now longer taking questions from this webinar. You might try posting your question on our Connect transplant or cancer pages: http://connect.mayoclinic.org/group/transplants/ and http://connect.mayoclinic.org/group/cancer/. Someone with a similar experience may have some insight. Or, you can visit this page to learn more about making an appointment at Mayo Clinic: http://www.mayoclinic.org/appointments. Best of luck!

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kelseydm

Jul 28, 2015 by kelseydm in Transplants · View  

A Minnesota woman, who was the first bone marrow transplant recipient at Mayo Clinic in 1963, returned to Rochester more than five decades after her procedure to visit the doctor who performed the transplant.

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karenmaryanne

Jun 14, 2015 by karenmaryanne in Transplants · View  

WHAT FOODS ARE TO BE AVOIDED AFTER LIVER TRANSPLANT

kelseydm

kelseydm responded Jun 15, 2015 · View

Hi Karen! Here is an article about diet and nutrition after a liver transplant: http://www.mayoclinic.org/departments-centers/transplant-center/liver-transplant/living-after/diet-nutrition. Hope this helps!

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kelseydm

Jun 2, 2015 by kelseydm in Transplants · View  

The rapidly evolving field of regenerative medicine—including stem cells, 3-D printing and bioengineering, among other technologies—is helping repair, and even regenerate, body parts and tissues damaged by disease, trauma or age. “Regenerative medicine is not trying to create the bionic man but to harness the healing powers of the human body and buttress them,” says Andre Terzic, director of the Mayo Clinic’s Center for Regenerative Medicine in Rochester, Minn. That means treating chronic or degenerative ailments and replacing failing organs.

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hurtle12

Jan 7, 2015 by hurtle12 in Transplants · View  

Diagnosed with NASH. Listed for liver transplant

Hello all.
My name is Howard and I have been Diagnosed with NASH. I'm not a drinker and my Dr. said it probably started out as Fatty Liver disease. I've been listed for two year's for liver transplant due to cirrhosis of the Liver. When it first started out I was sick all the time and in the hospital 4 time's. In November of 2013 my MELD score went up to 23. But since then I've made lifestyle changes and my meld is down to a 14. I still fight with the chronic fatige but feel pretty good all thing's considered. Has anyone else out there experciened this also ?. I almost feel like it's the calm before the storm.

Edited: 01/13/2016 @ 9:43am

hurtle12

hurtle12 responded May 5, 2015 · View

Hi Dianne Thank's for your response. I can relate to what your going thru with the pain and fatige and just not feeling well anymore. I saw were you had said you believe that milk thistle has helped you with your nash. Is this something you take everyday ? I need to research it farther. Like you said ,medical technology has come a long way but we all need to do everything that we can [...]

hurtle12

hurtle12 responded May 5, 2015 · View

Thank's for your seconed reply. That made my day with your quote .Don't worry about nothing and pray about everything. I hope you don't mind if I use that again. And I agree with you 100%, Exercise is a must. Evan if it's just a little

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franksjohn

Apr 9, 2015 by franksjohn in Transplants · View  

Need to know how Mayo Clinic does living-donor kidney transplant

I need to more about mayo clinic? Because I need to know more about how, the mayo clinic does there living-donor kidney transplant etc etc. because I am dealing with a clinic that seams not to care really of what I am asking, saying, or wishes that I want to know that is possible for what I want to do. I would like to say my side of thinks! Do you understand what I am trying to say? Thinks for your time. jon

Edited: 01/13/2016 @ 9:44am

LaurenSpiceland

LaurenSpiceland responded Apr 13, 2015 · View

Hey John, have you registered for the living-donor kidney transplant webinar? Two of our transplant experts will give a short presentation and answer questions tomorrow at noon: http://connect.mayoclinic.org/discussion/interactive-webinar-what-patients-and-donors-need-to-know-about-living-donor-kidney-transplant/.

lisaann52

lisaann52 responded Apr 13, 2015 · View

The webinar is just what I need. My son is going to need a transplant in the next few years. This will be his second in 20 years. There are more resources available now and I plan on learning as much as possible .

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Shawngbishop

Dec 10, 2014 by Shawngbishop in Transplants · View  

Webinar: Fatty Liver Disease and Liver Transplantation: For Adults and Children

It will include a brief review on the frequency and diagnosis of fatty liver disease. There will also be discussion on the management of fatty liver disease in both adults and children. We plan to educate on liver transplantation as a treatment for advanced disease and cirrhosis. Speakers include: Mayo Clinic physicians: Dr. Kymberly Watt, Dr. Julie Heimbach and Dr. Samar Ibrahim, from our Gastroenterology and Transplant Teams. Please register here to sign up and receive email reminders for event: http://mayocl.in/1Dhcjhn Then simply click the play button in the video viewer below to participate. You can also pose questions in the comments column on the right or on Twitter using #FattyLiverDisease . SPEAKERS: Dr. Kymberly Watt Dr. Julie Heimbach Dr. Samar Ibrahim
Would you like to:Request an Appointment, Learn more about Fatty Liver Disease, Learn more about Liver Transplantation  

Edited: 01/13/2016 @ 9:31am

Shawngbishop

Shawngbishop responded Jan 29, 2015 · View

Sorry, not at this time.

Shawngbishop

Shawngbishop responded Jan 30, 2015 · View

Erin, the primary benefit of living donor liver transplant is to allow the potential recipient to move forward to transplant sooner. This allows the patient to avoid continued suffering on the waitlist and the opportunity for transplant before the patient becomes too ill to safely undergo the operation. There is a survival benefit of living donor transplant, but that does depend on the availability of deceased donor transplantation. In some areas of the United States [...]

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LeeAase

Jan 8, 2015 by LeeAase in Transplants · View  

2-time transplant survivor's new heart ready for a wedding - KMSP-TV

In a 100-year-old home in Rochester, originally built for one of Mayo Clinic's first surgeons, is where Alyssa Sandeen spent 5 months of her life.

We first told you about Sandeen in the summer of 2013, not long after she got her second heart transplant. She got her first at age 8 in 1998, a heart that lasted 15 years – but barely.

Heart attacks in 2011, 2012 and 2013 landed her at Rochester's St. Mary's hospital for 6 months waiting for a donor. Then, just as she had done as a little girl, she moved into the Gift of Life Transplant House in Rochester for a few months. It's a place to stay, as doctors want their patients nearby for a while.

Now, Sandeen is opening up about her new heart that's fully of new love.

See the TV story online here: http://www.myfoxtwincities.com/story/27787334/2-time-transplant-survivors-heart-onto-bigger-endeavors-her-wedding

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lastdaze04

Jul 18, 2014 by lastdaze04 in Transplants · View  

Too old for a kidney transplant? Am also diabetic

Hello All: My name is Rick Richards I have come to a crossing point in my life, one I knew that was going to come but not this quick. I have a question if it in the wrong forum please direct to the correct one.
I need a Kidney transplant (Kidney forum??) But my Dr said that it will not happen because I am too old and a Type 2 Diabetic. Is that true? I am 55 years old, only slightly over weight 206lbs and I am 6ft tall and very active, meaning I assist in the care of my four grandsons, and I have the biggest paycheck. The thought of going on Dialysis, scares the crap out of me an I love my job I am at, The thought of going on disability is abhorring, I would rather go end it all. Someone please tell me that my Dr is wrong. I already have 3 family members lined up to see if they are compatible matches. These are my immediate questions at the moment, I have a ton more in my mind, I look forward to your response.
Thanks
Rick

Edited: 01/13/2016 @ 9:52am

swaggerl

swaggerl responded Oct 25, 2014 · View

@Rick, Being 55 and diabetic does not disqualify you. Keep seeking information and try to go to Mayo for a 2nd opinion. I am 62 and diabetic and have had a transplant. Also been on dialysis. It is not fun, but it keeps you alive until you can get a transplant. Don't give up. Best of luck to you.

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bettyjeanne

bettyjeanne responded Nov 8, 2014 · View

Hi Rick, My kidney doctor also told me my kidney issues were the result of old age, and I just need to accept being unable to urinate and having wild water retention fluctuations of 10-30 lbs. I'm 5'6" and my base weight is 125 and I am only 56 years old. I refuse to accept this woman's opinion that my kidney issues are do to "old age." The idea that we are being labeled as [...]

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richardfroze

Jul 26, 2014 by richardfroze in Transplants · View  

I had an aortic valve transplant 3yrs ago, experiencing symptoms

I had an aortic valve transplant 3yrs ago and have been experiencing symptoms like being on a slow adrenalin drip. This occurs at times during the day. Somewhat related to anxiety or maybe stress? Is it medication related? rjf

Edited: 01/13/2016 @ 9:54am

Margaret_Marie

Margaret_Marie responded Jul 28, 2014 · View

Hi, @richardfroze. Here's a link to some lifestyle and home remedies for an aortic valve regurgitation that may be helpful for you: http://www.mayoclinic.org/diseases-conditions/aortic-valve-regurgitation/basics/lifestyle-home-remedies/con-20022523. Does anyone else have some advice for Richard?

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charba1

20

Pancreas and Kidney transplant - share experiences

Latest reply Tue, Feb 2 at 2:10pm CST by sandras

bobbutler

2

How do I get on multiple transplant lists for a liver?

Latest reply Sun, Jan 31 at 10:41pm CST by sandras

Shawngbishop

34

Bone Marrow Failure and Bone Marrow Transplantation

Latest reply Fri, Jan 29 at 8:49am CST by LaurenSpiceland

gregorytremblay

4

I am an Anon Kidney Donor - wonderful decision

Latest reply Wed, Jan 13 at 5:32pm CST by gregorytremblay

nancyligon

1

I was Dxed with IPF 2014.

Latest reply Wed, Jan 13 at 9:37am CST by colleen_young

magrand48

1

I had a Liver transplant 5 years ago

Latest reply Wed, Jan 13 at 9:24am CST by colleen_young

user_chcbc919c

3

On hold for liver transplant

Latest reply Wed, Jan 13 at 8:52am CST by colleen_young

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