This group is for people interested in transplants. Join the discussion! Post your question, share your story, or just say hello and introduce yourself.
I have dermatomyositis with ILD for over 13 years. Since dermatomyositis is an autoimmune disease could a patient like me be able to have a transplant or would my body attack the new lung also?
Edited: 04/22/2016 @ 4:38pm
Hi All ,
I have been accepted and am now ACTIVE on UNOS as of Thursday for a liver transplant ! and wow i thought my feelings and emotions were out of wack before now they are running rampid ! i was told to get caught up on my sleep and as much rest as possible but i am finding it hard to do 🙁 i cant turn off my mind and i am afraid i will miss my calling . Anyone else been through a liver transplant at Mayo in Jacksonville ??
Edited: 04/06/2016 @ 3:57pm
how long wait time is usual for a Mayo kidney transplant after being placed on the list? I am on the list now, and have been for 18 months. The main concern I have is finding temporary housing on "immediate" notice when I am notified that it's time. Is there any way to get this set up in advance? I was able to find possibilities during the screening process, but the immediate nature of this is what concerns me. Maybe members might have suggestions. thank you.
Edited: 04/03/2016 @ 12:33pm
Hello there, I'm new to the site. Can you help? I'd like to know "what's the longest time a GCM heart transplant patient has lived for, post op? I know each case is unique.. Etc etc but I really would appreciate an answer to this question. Thank you.
Edited: 03/23/2016 @ 9:02am
Living Kidney Donor Advice
Is anyone there able to offer advice for a living kidney donor? I am in the
process of being approved to donate and I am having some unsettling
feelings about the recipient's choice of hospitals. She is a patient at
Lutheran Hospital in Fort Wayne, IN. I have never had anything done at this
hospital, but the facility seems to be a bit older than some. I looked at
their rate of success and it was only 84% compared to a national average of
over 90%. The transplant coordinator told me that they had a review team
come in and they changed some of their practices and that the number should
go up next time they publish. Should I be concerned about the facility? I
have a family member who had her transplants done at Mayo, so my confidence
is high for Mayo Clinic.
Thanks so much!
On Wednesday, Jan. 20 at Noon CT, Mayo Clinic will host an interactive webinar on bone marrow failure and bone marrow transplantation for adult and pediatric patients. Shakila Khan, M.D., Chair of Pediatric Hematology-Oncology and Director of the Pediatric Bone Marrow Transplant Program, Vilmarie Rodriguez, M.D., Associate Director of the Pediatric Bone Marrow Transplant Program, and Mrinal Patnaik, M.B.B.S., Assistant Professor of Medicine and Oncology, will discuss bone marrow failure symptoms, diagnosis, and treatment options, including bone marrow transplantation. A live question and answer session will follow the presentation. Sign up for the webinar now to receive email reminders and post questions for the doctors.
Would you like to:
Edited: 01/29/2016 @ 8:37am
Does anyone know
Edited: 01/29/2016 @ 8:47am
I have been added to the transplant list for a liver at Yale new haven. I understand I can get on other list in other parts of the country. How do I go about this?
Edited: 01/13/2016 @ 9:51am
Why doesn't FL currently perform living donor liver transplant and any plans on horizon to start?
Edited: 01/13/2016 @ 9:46am
Hello All. My name is Nancy. I was Dxed with IPF 2014. I know am going to go thru the process of being placed on transplant list . I am hoping I can get advice from the get go on this .Afraid and stupid and otherwise in good health ( end stage lung disease in right lung) 61... Help. What can I expect?
Edited: 01/11/2016 @ 8:11am
Would like to hear from anyone who has been through a liver transplant. Both donor and recipient. Thank you- Kari Ulrich
On Tuesday, Aug. 11 at Noon CT, Mayo Clinic will host an interactive webinar on hilar cholangiocarcinoma (cancer of the bile ducts). Julie Heimbach, MD, Liver Transplant Program Surgical Director, and Sumera Rizvi, MBBS, Gastroenterology and Hepatology Fellow, will discuss hilar cholangiocarcinoma symptoms, diagnosis, and treatment options, including liver transplantation. A live question and answer session will follow the presentation.
Would you like to:
Edited: 08/11/2015 @ 9:23am
A Minnesota woman, who was the first bone marrow transplant recipient at Mayo Clinic in 1963, returned to Rochester more than five decades after her procedure to visit the doctor who performed the transplant.