#AsktheMayoMom about Hypoplastic Left Heart Syndrome (HLHS)

Thu, Feb 2, 2017
1:00pm to 2:00pm ET

Description

Dr. Angela Mattke, pediatrician, and Dr. Timothy Nelson, pediatric cardiologist and director of the Todd and Karen Wanek Family Program for HLHS, discuss hypoplastic left heart syndrome (HLHS).

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Dr. Mattke and Dr. Nelson answer questions live during the broadcast. Stay up-to-date with the latest information about HLHS by reading the HLHS Cause to Cure blog.

Location

Online

How long do you anticipate before stem cell therapy is approved by the FDA for CHD treatment? Also, is the long term goal the ability to grow new hearts from “scaffolding” with the patient’s stem cells and how long do you anticipate that becoming a reality?

Currently you are introducing stem cells during the Glen to improve heart function. Are there any other times, like through the Fontan, or a cath procedure where this may be possible? (My son is post Glen with low function.)

Welcome to Connect, @katherinemarie and @brittagirl11. Thank you for your questions in advance of the live event. They have been submitted.
In the meantime, I hope you’ll take the opportunity to connect with one another and to explore the conversations on Connect.

What if anything is being done post Fontan in terms of stem cell treatment?

Liked by mschock

Are stem cells projected to be used just on newborns or are there other treatments for older children/young adults who have HLHS? I have heard of older children with HLHS who battle JRA, weakened immune systems, liver enlargement, and skin ailments (warts and molluscum). Do you have any research that could help clarify these other long term “side effects” of cardiac conditions?

Thank you for joining us for the live Video Q&A with Dr. Mattke and Dr. Nelson. For anyone who missed the live event or if you want to watch it again, the video is archived at the top of this page.

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