In this webinar, cardiologist Martha Grogan, MD, and hematologist Prashant Kapoor, MD, provide an overview of amyloidosis, including tests and evaluations, treatment options and how to manage your symptoms. A question and answer session followed the presentation.
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Why you dont give egcg curcumine and reveratrol in your patients? If you look up in internet werner hunstein egcg, you see the life from oncologist take egcg for this disease ans that work.marylou, my wife was diagnostiquee as younger patient of Belgium d amylloidosis’localised al in the heart, the most eminent specialists of France wanted to change her heart which was thickened is 19 mm. She underwent 3 months of chemotherapy which was l hell, she has almost dead 3 times, has the end of every cycle. She has of to stop the chemotherapy which caused her a peripheral neuropathy. She has begin has to look after itself with the green the, of the curcumine, of propolis and other natural things and in August it had another septum measure has 19mm, in November, 17mm, January, 14mm and now 12mm. Blood tests are good, the curcumine high dosage for decrease free light chains and the green the prevent the light chains from going back up. The life is beautifull now
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http://www.hunstein-egcg.dehttp://www.ncbi.nlm.nih.gov/pubmed/20221615http://www.ncbi.nlm.nih.gov/pubmed/22620965http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3445797/http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3254632/http://cancerres.aacrjournals.org/content/73/8_Supplement/459.shorthttp://www.ncbi.nlm.nih.gov/pubmed/25554227http://www.ncbi.nlm.nih.gov/pubmed/25436420http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3189735/http://www.alliance-du-dr-rath-pour-la-sante.org/lettre/phytobiologicals_5_egcg.pdfhttps://clinicaltrials.gov/ct2/show/results/NCT01511263
https://dl.dropboxusercontent.com/u/7106709/BindingEGCGtotransthyretin.pdf
dx AL Oct 2013
ASCT Dec 5 , 2013
Neuropathy and proteinuria main effects ( I also have bilateral Brachial plexus neuropathy)
Kidneys still functioning ok
Blood numbers and chem numbers in acceptable ranges
FLC went to normal with normal ratio 6 months after ASCT
Last blood work Lambda was up out of normal very slightly 28.2 (26.3 is high end of normal)..
Kappa fine at 14.3
Ratio fine at .51
No other sign of disease progression
Question:
Not worried at slight bump yet…but when would I need to be concerned about higher FLC…was around 100 I believe at diagnosis
@catrinka77
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