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1,484 total results
Discussions (41)
No remission after three years
’ve since been weaned off and take Actemra ... addition I’ve been diagnosed with PMR
Last active: May 31 9:20pm
Aging
looks but since being diagnosed with PMR ... September 24 and being on prednisone and Actumra
Last active: Jan 23, 2025
Mental fog and slight dizziness on Actemra
Mental fog and slight dizziness on Actemra ... I've had PMR for almost 13yrs, ... infusion a couple of weeks ago of Actemra
Last active: Jun 26, 2025
Are others with GCA and PMR on Tyenne Monthly Infusions?
Are others with GCA and PMR on Tyenne ... having been diagnosed with GCA & PMR ... tapering over a year+ to 0 as Tyenne (an Actemra
Last active: 2 days ago
Infusion vs injection of tocilizumab (Actmera)
Infusion vs injection of tocilizumab (Actmera ... after nearly 2 years of steroids for PMR
Last active: Jul 20, 2025
PMR/GCA patient asking about headaches
PMR/GCA patient asking about headaches ... was diagnosed in December 2024 with PMR ... now at 12mg. an on my 2nd week of Actemra
Last active: Jun 13, 2025
Statins - side-effects, PMR, Giant Cell Arteritis
Statins - side-effects, PMR, Giant Cell ... My husband was diagnosed with PMR May ... Then he started on Actemra injections ... Because he cannot be on Actemra with ... tapering the prednisone and on the Actemra
Last active: May 26, 2024
Question about PMR in addition to other autoimmune disorders?
Question about PMR in addition to other ... Actemra was used to target PMR and ... PMR responds to prednisone but many ... In my case, PMR wasn't the only ... 'm not sure "isolated" PMR
Last active: Jun 3, 2024
Prednisone for life?
plus Tyenne infusions (similar to Actmera ... like this - is it true that for some PMR
Last active: Jun 21 9:45pm
Swollen Parotid Glands - I may have Sjögren’s
(GCA) and Polymylagia Rheumatica (PMR ... I also started taking Actemra last year ... diagnosis, just like I did with GCA/PMR
Support Group: Autoimmune Diseases
Last active: May 10 8:58am
Revisit the 'PMRandIL6' site _PMR needs NEW FACES of patients
Revisit the 'PMRandIL6' site _PMR ... diagnosed with adrenal insufficiency after Actemra ... the challenges and opportunities of PMR ... I have attached ref to PMR -ages from ... was Dx; and found out my cousin had PMR
Last active: Jun 18, 2023
Sleep apnea and GCA
My husband was diagnosed when PMR May ... He was so healthy before he got PMR. ... ’ve been tapering with the help of Actemra
Last active: Oct 19, 2024
Damage to adrenals? Addison's Disease?
I've been treating PMR for 3+ years ... ;ve been on Methylprednisolone for PMR ... started tapering the steroid and began Actemra ... really hurting from that on top of the PMR ... Methylprednisolone to see if it was PMR
Last active: Aug 9, 2025
Actemrya injections
Actemrya injections ... being diagnosed 2 years ago with both PMR
Last active: Apr 11 12:37pm
New to this support group.
Hi, I was diagnosed with PMR and GCA ... years to taper off prednisone and Actemra
Last active: Jun 12, 2025
Anyone had a similar experience?
false starts I was diagnosed with PMR ... Gave Actemra a try but did not help. ... tells me he doesn’t believe I have PMR
Last active: Feb 25, 2024
Plateau ?
#39;t get below 10mg until I started Actemra ... and could almost forget I that I had PMR
Last active: Oct 21, 2025
Ongoing jaw pain in established GCA/PMR patient
Ongoing jaw pain in established GCA/PMR ... I was diagnosed with GCA and PMR in ... Monthly Actemra infusions began in November
Last active: Jul 1 10:01am