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30 total results
Comments (28)
Hi @leslie04, I combined your new post with your Sensory Ganglionopathy update to your previous discussion...
https://connect.mayoclinic.org/comment/1123481/
I combined your new post with your Sensory ... Ganglionopathy update to your previous ... discussion "Sensory Ganglionopathy ... /connect.mayoclinic.org/discussion/sensory-ganglionopathy-help
Welcome @toniabarzee, You bet this group is still here 🙃. @audry also started a discussion in...
https://connect.mayoclinic.org/comment/1592900/
been diagnosed with gluten ataxia and sensory ... i-have-been-diagnosed-with-gluten-ataxia-and-sensory-ganglionopathy ... lists member comments that discussed sensory ... ganglionopathy if you want to read ... search=sensory%20ganglionopathy%20.
Hi Stephen. I’m sorry to hear about your illness and the challenges that it brings. Just...
https://connect.mayoclinic.org/comment/1575902/
I suffer from a condition called sensory ... ganglionopathy. ... and there are a number of causes of sensory ... ganglionopathy, not just gluten sensitivity
@busylady10 It's not a silver bullet, unfortunately, but I have found it helps with some of...
https://connect.mayoclinic.org/comment/1613912/
helps with some of the symptoms of my sensory ... ganglionopathy (closely related to
You are correct that it is relatively rare. I was diagnosed with idiopathic non-length dependent SFN...
https://connect.mayoclinic.org/comment/1629310/
my diagnosis has been re-labeled as sensory ... ganglionopathy, which may be due to ... impairment, which is more typical for sensory ... handle on (the only way to confirm sensory ... ganglionopathy is to do an autopsy,
Great attitude. As a physical therapist who was diagnosed with idiopathic sensory ganglionopathy 8 years ago,...
https://connect.mayoclinic.org/comment/1122097/
who was diagnosed with idiopathic sensory ... ganglionopathy 8 years ago, I find
Hello @leslie04, Welcome to Connect. It is a terrible feeling of being alone with a diagnosis...
https://connect.mayoclinic.org/comment/918419/
ganglionopathy. ... I think Sensory Ganglionopathy is also ... called Sensory Neuronopathy. ... Neuronopathy – Sensory Ganglionopathy ... https://www.news-medical.net/health/Sensory-Neuronopathy-Sensory-Ganglionopathy.aspx
Hi, I did have a workup for paraneoplastic disease after being diagnosed with sensory ganglionopathy. It...
https://connect.mayoclinic.org/comment/1172770/
disease after being diagnosed with sensory ... ganglionopathy.
I’ve recently been diagnosed with sensory ganglionopathy I have horrible burning/numbness in and on my mouth,...
https://connect.mayoclinic.org/comment/1005212/
I’ve recently been diagnosed with sensory ... ganglionopathy I have horrible burning
I take 2400 mg a day. I have Sensory Ganglionopathy and the neuropathy with it is...
https://connect.mayoclinic.org/comment/926375/
I have Sensory Ganglionopathy and the
Hi, I sympathize. I've had sensory ganglionopathy since 2016. The bradycardia and hypotension were quite severe...
https://connect.mayoclinic.org/comment/1160378/
I've had sensory ganglionopathy
I first started with Benlysta injections and then started Iv Benlysta. I’ve been on this a...
https://connect.mayoclinic.org/comment/1360776/
sjogrens with severe Polyneuropathy and sensory ... ganglionopathy.
Hi Langloism, Just diagnosed with sensory ganglionopathy. Please see my response to Leslie for details. That’s...
https://connect.mayoclinic.org/comment/1032880/
Langloism,
Just diagnosed with sensory ... ganglionopathy.
Welcome @ratmum, I'm happy to see that you have already connected with @langloism and @leslie04. Hopefully...
https://connect.mayoclinic.org/comment/1032911/
members with some experience with sensory ... ganglionopathy will join the discussion
Hi. I have peripheral neuropathy due to a gluten sensitivity. Was diagnosed with celiac ataxia and...
https://connect.mayoclinic.org/comment/1597223/
Was diagnosed with celiac ataxia and sensory ... ganglionopathy.
I was on 600mg in the morning and at 2pm and then 1200mg at night. I...
https://connect.mayoclinic.org/comment/999553/
difficulty was they had no clue I had sensory ... ganglionopathy. ... But with my disease all sensory.
My diagnosis is idiopathic sensory ganglionopathy. Fortunately, I have minimal side effects from the gabapentin. Initially,...
https://connect.mayoclinic.org/comment/1146591/
My diagnosis is idiopathic sensory ganglionopathy
Hi, yes you are not going crazy and you are not alone! I suffer from sensory...
https://connect.mayoclinic.org/comment/1573858/
I suffer from sensory ganglionopathy
Hi everyone my name is Leslie and I am 46 years old. I have sensory ganglionopathy....
https://connect.mayoclinic.org/comment/948915/
I have sensory ganglionopathy.
Hi I want to first off let you know. I am telling you my experience and...
https://connect.mayoclinic.org/comment/1174995/
kept upping it not realizing I had sensory ... ganglionopathy.
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