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Comments (28)
Hi @leslie04, I combined your new post with your Sensory Ganglionopathy update to your previous discussion...
I combined your new post with your Sensory ... Ganglionopathy update to your previous ... discussion "Sensory Ganglionopathy ... /connect.mayoclinic.org/discussion/sensory-ganglionopathy-help
Support Group: Neuropathy
Posted: Aug 14, 2024
Welcome @toniabarzee, You bet this group is still here 🙃. @audry also started a discussion in...
been diagnosed with gluten ataxia and sensory ... i-have-been-diagnosed-with-gluten-ataxia-and-sensory-ganglionopathy ... lists member comments that discussed sensory ... ganglionopathy if you want to read ... search=sensory%20ganglionopathy%20.
Support Group: Neuropathy
Posted: Jun 7 2:15pm
Hi Stephen. I’m sorry to hear about your illness and the challenges that it brings. Just...
I suffer from a condition called sensory ... ganglionopathy. ... and there are a number of causes of sensory ... ganglionopathy, not just gluten sensitivity
Support Group: Brain & Nervous System
Posted: May 16 11:13am
You are correct that it is relatively rare. I was diagnosed with idiopathic non-length dependent SFN...
my diagnosis has been re-labeled as sensory ... ganglionopathy, which may be due to ... impairment, which is more typical for sensory ... handle on (the only way to confirm sensory ... ganglionopathy is to do an autopsy,
Support Group: Neuropathy
Posted: Jul 25 4:12pm
Hello @leslie04, Welcome to Connect. It is a terrible feeling of being alone with a diagnosis...
ganglionopathy. ... I think Sensory Ganglionopathy is also ... called Sensory Neuronopathy. ... Neuronopathy – Sensory Ganglionopathy ... https://www.news-medical.net/health/Sensory-Neuronopathy-Sensory-Ganglionopathy.aspx
Support Group: Neuropathy
Posted: Aug 24, 2023
I was on 600mg in the morning and at 2pm and then 1200mg at night. I...
difficulty was they had no clue I had sensory ... ganglionopathy. ... But with my disease all sensory.
Support Group: Chronic Pain
Posted: Jan 18, 2024