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Comments (1,096)
Hello @wendydarling, You will notice that we merged your discussion with an existing discussion so that...
folks who are newly diagnosed with PMR ... the discussion where you can read what ... dadcue in the following discussion helpful ... what helps" - https://connect.mayoclinic.org ... search=PMR+what+helps.
Posted: Apr 26 12:55pm
Welcome @summertime24, Sorry to hear that Mr. Ugly has invaded your personal space. Eating healthy with...
less inflammatory foods definitely helps ... I've had PMR twice. ... what helps" if you want to scan ... some new search words to tune it to what ... search=PMR%20what%20helps
Posted: Feb 6 5:47pm
What dose of steroids are you currently on? You can't actually just stop taking them outright...
What dose of steroids are you currently ... of the other autoimmune diseases, PMR ... It happens more frequently with PMR ... always needs to be taken that your PMR ... arteries and possible hearing, as well helping
I can understand not wanting to be on prednisone. Me either! But, reality has a funny...
their own "ideas" as to why PMR ... An Aryuvedic Dr is helping me nourish ... #34;get well" you need to find what ... with long term damage from untreated PMR ... untreated (due to it being undiagnosed) PMR
Hello @pmr52025, I would like to add my welcome to Connect along with @beauty44, @st1300 and...
Hello @pmr52025, I would like to add ... might find the following discussion helpful ... upcoming webinar that you might find helpful ... Topics covered: - How PMR is diagnosed ... care - Gaps in today’s practices and what
Discussion: Reducing Pednisone
Posted: Sep 17 7:37am
Hello, friends. I have had PMR since late October 2023, and have been on methylprednisolone (because...
I have had PMR since late October 2023 ... That helped, but then today I went back ... acetaminophen, but these really do help ... just "tough it out" and see what
Discussion: PMR Flare
Posted: Sep 29 3:47pm
I have been on Actemra for 18 months for PMR and rheumatoid Arthritis..the first 6 months...
been on Actemra for 18 months for PMR ... wasn’t holding the pain .it seemed to help ... Don’t know what that means for the future
Posted: Sep 30 4:03pm
Prednisone is difficult to deal with in regard to weight. I found that it really changed...
lost 4 pounds when I was sick with PMR ... really difficult to judge how much and what ... It did help me that I was at least able
Posted: Sep 27 2:52pm
Does it seem like PMR/GCA is getting more attention now as compared to 10 years ago...
Does it seem like PMR/GCA is getting ... remember when I was diagnosed with PMR ... 't know much of anything about PMR ... Identifying what the condition is and ... difficulty with tapering is real might be a helpful
"What happens if people quit the methotrexate or kevzara but keep tapering the prednisone? Anyone know?...
"What happens if people quit the ... Methotrexate was helping me decrease ... I had what is called "relapsing ... PMR" when I tried to taper off ... why alternative medications to treat PMR
I was sucessfuly treated for PMR, ended in 3/23 with a slow taper of the prednissilone...
I was sucessfuly treated for PMR, ended ... muscle pain (exactly) that I had with PMR ... take anything, Tylenol didn't help ... of phone calls to let everyone know what
Posted: 10 hours ago
@jeff97 These are my feelings also. Genetics and age play a big factor. I am only...
I am only in to a couple months of PMR ... really trying to get perspective on what ... ahead and I know that exercise really helps ... have modified some routines but from what
Posted: 18 hours ago
If you are a steroid dependent asthmatic then what is the advantage of taking hydrocortisone? I...
a steroid dependent asthmatic then what ... on Prednisone for 12 years to treat PMR ... think hydrocortisone was necessary to help ... What was more important was a non steroid ... treatment for PMR.
Posted: Sep 20 10:39am
The strategy of waiting 6 months until my cortisol level to improve wasn't exactly a strategy....
faith that Actemra was controlling PMR ... so I didn't anticipate a PMR flare ... However, I never would have anticipated what ... "first line treatment" for PMR ... Restarting Actemra likely helped reabsorb
Discussion: Relapse
Posted: 5 days ago
I couldn’t have said it better. I took prednisone for a year. They were a miracle....
hydroxychloroquine 2 weeks ago to help ... It’s helping me get my life back and ... find it funny that many of us with PMR ... It really stopped me from doing what ... Now after 1.5 years with PMR I am 75
Sleeping poorly is a problem. Taking Prednisone won't help your circadian rhythm. For PMR symptoms to...
Taking Prednisone won't help your ... For PMR symptoms to increase with more ... Since your sleep issues existed before PMR ... PMR symptoms of pain and stiffness are ... What worked for me was to take a small
Posted: Sep 28 6:34pm
I understand what you are going through. What has helped me get down to 2 mg...
I understand what you are going through ... What has helped me get down to 2 mg ... the level of treatment but it has helped ... condition we all seem to have called PMR
I think Megz is right. If turmeric worked to a clinically significant level, we would all...
IN fact, that is what they applied it ... My general practice dr who is helping ... me with the PMR journey said (and I
Thank you, folks, for your replies. Tomorrow they (the practice where I have been going for...
practice where I have been going for PMR ... injection of prednisolone (80 mg) to help ... #39;t have to go to the ER which is what ... Sharing with each other helps!
Posted: Jul 28 2:48pm