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Comments (749)
Hi Debbie @debbiebas216, When I woke up with a pain level above 2 on my scale...
level above 2 on my scale of 0 to 10 ... that had me pain free. ... aren't alone struggling with the PMR ... and pain levels. ... search=PMR%20and%20pain%20levels.
Posted: Mar 7 2:12pm
I am not diabetic or even pre-diabetic and have struggled with neuropathy for over five years....
I still have neuropathy, but the pain ... level is now down to a lvl 2, it has ... I also have PMR and have been on prednisolone
Support Group: Neuropathy
Posted: Aug 23 6:09am
"When I got down to 1 mg of prednisone, I decided to go ahead and take...
My pain level was not any worse after ... For the most part, my pain level is ... I have some bad pain days where I think ... I remind myself that I had bad pain ... days before PMR and I never took Prednisone
@mezack25, Do you think the pain might be more related to the specific type or amount...
@mezack25, Do you think the pain might ... When my PMR was active, anytime I did ... ) exercise or activity, I had more pain ... dosage of prednisone along with the level ... of pain when you get up in the morning
Posted: Aug 24 7:05am
Recently, August 23, 2025, I had Covid and took Paxlovid…all of my PMR symptoms were relieved...
Covid and took Paxlovid…all of my PMR ... I suspect that my PMR may be from a ... I have been suffering with varying levels ... of pain for over a year. ... prednisone I still have days of terrible pain
Hello @mjontour. I'm now at 2.5 years with PMR. @73 now, down to 1mg (starting today)...
I'm now at 2.5 years with PMR. ... figured things out trying to separate PMR ... currently not experiencing specific PMR ... pain for at least the last 7 months ... My energy levels have been slowly increasing
Discussion: PMR and fatigue
Posted: Aug 15 10:50am
Have you seen the various graduated reduction schedules? They can give a 1mg reduction in 7-8wks...
7.5mg to stabilise and monitor for pain ... Do you record your daily morning pain ... levels on a 1-10 scale to keep an eye ... flares seems to be key in getting over PMR
Posted: Aug 29 4:58pm
The answer is that you could be, but it is very confusing, as you said. If...
But if the pain is from PMR inflammation ... time will possibly increase as the level ... taking enough prednisone to control the level ... If there is GCA/LVV with the PMR, then ... one of the primary inflammatories in PMR
Posted: 4 days ago
Ok, here is my response to some of your questions: 1. Fatigue (lethargy) still exists, how...
would suggest you start at a lower level ... Shoulder pain - exercise routine helping ... hurting and ongoing or aggravating pain ... prednisone allows the normal aches and pains ... I hope your PMR stays inactive.
Do you keep a daily note of your pain level? @johnbishop recommends keeping a log of...
level? ... levels from 1 to 10, and I have found ... With my flare last year, the pain level ... blood tests to check your inflammation levels ... and is recommended for anyone with PMR
If you drop your dose below the level required to eliminate the inflammation from the PMR,...
If you drop your dose below the level ... eliminate the inflammation from the PMR ... inflammation will build up again and pain ... The steroids don't cure the PMR, ... You are also at the level where your
Posted: Aug 27 7:20pm
I had the same experience with Actemra. I was instructed to stay on 3 mg when...
stay on 3 mg when my morning cortisol level ... as it takes" for my cortisol level ... for 6 months for a morning cortisol level ... My cortisol level was adequate with ... no PMR pain so I took the plunge to
A study of circadian variation in PMR found that plasma concentrations of IL-6, IL-8, TNF-α, and...
A study of circadian variation in PMR ... untreated patients and controls, although levels ... matched the early-morning peak of pain ... In addition, melatonin levels were consistently ... turn accounts at least partly for PMR
Posted: Aug 14 4:46pm
Do you know if your inflammation levels have increased along with the pain? What level of...
Do you know if your inflammation levels ... have increased along with the pain? ... What level of pain on a 1-10 scale would ... control is key to successfully beating PMR ... What are your inflammation levels like
Hello @havana, Welcome to Connect. PMR can definitely be a challenge doing some of the things...
PMR can definitely be a challenge doing ... discussion/comprehensive-overview-of-pmr ... / My PMR has been in remission for ... mg prednisone and was pretty much pain ... My pain level when I woke up in the
Posted: Aug 17 3:45pm
I just set mine up after someone suggested. I have a spreadsheet and track: date; prednisone...
date; prednisone mg; sleep hrs: AM Pain ... Level; running miles; difficulty of ... minutes; babysitting minutes; headache level ... ; mental health rating; PM Pain level ... pretty low, but I've heard a lot of PMR
Was Actemra providing you with 24 hour pain relief? The only reason I ever spit my...
Actemra providing you with 24 hour pain ... ever spit my dose was because the pain ... I woke up with pain in the middle of ... inflammation I had when I was treating PMR ... faster because I never allowed my blood level
Posted: Aug 30 6:48am
Was diagnosed with PMR 2 years ago and put on Prednisone (20 mgs ... in error,...
Was diagnosed with PMR 2 years ago and ... doesn't work as well, my energy levels ... very low and am experiencing joint pain ... My rheumatologist has said that PMR
Posted: Jul 19 6:52am
The pain is not a sharp pain to me; it is more a severe soreness of...
The pain is not a sharp pain to me; ... two years now and have been almost pain ... your sed rate and c reactive protein levels ... are normal, I doubt it is PMR. ... My levels were thru the roof.
Oh yes, I have many other symptoms and I've had them for many years, well before...
well before my first encounter with PMR ... I do have chest pain but it's part ... girdle, shoulder blades, upper thoracic pain ... don't see a way to get my energy levels
Posted: Jul 17 3:12am