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934 total results
Comments (886)
Hi Debbie @debbiebas216, When I woke up with a pain level above 2 on my scale...
level above 2 on my scale of 0 to 10 ... that had me pain free. ... aren't alone struggling with the PMR ... and pain levels. ... search=PMR%20and%20pain%20levels.
Posted: Mar 7, 2025
I was diagnosed with PMR about 7 months ago. In my opinion the pain level depends...
I was diagnosed with PMR about 7 months ... In my opinion the pain level depends ... According to my Rumilogist stiffness and pain ... morning and rest of day relatively pain
Posted: Apr 24 7:24am
My understanding is that the purpose of prednisone is to eliminate pain while the body recovers...
purpose of prednisone is to eliminate pain ... while the body recovers from the PMR ... and the PMR "burns itself out.& ... is accurate or not, if you are in pain ... responds in a different way to different levels
Posted: Apr 25 8:15am
I’ve been lurking in this group and trying to read from what I would feel seems...
And diagnosed PMR. ... legs seemed to simmer, as did the pains ... Looking back his mgus levels were off
Posted: Apr 26 8:12pm
I received my diagnosis today, 5/18/26 after the results from my blood test came in. I...
I have been dealing with pain in my ... up in the morning now I still have pain ... , though to a much lower level. ... Is my dose too low since I have pain ... fine and this common for someone with PMR
@astarte888 and all... Well, when I had Mono in my teens as well it was similar...
the ER, with Covid pneumonia and O2 levels ... I developed PMR, GCA and Vasculitis ... that have each caused me many days of pain
Posted: Apr 23 9:06am
@cwbf I'm not so sure PMR always burns itself out or resolves on its own. My...
@cwbf I'm not so sure PMR always ... agree that Prednisone controlled my pain ... It restored my inflammation levels to ... relatively high dose prednisone use for PMR ... made my side effects feel worse than PMR
Posted: Apr 25 9:21am
I was diagnosed with PMR in January 2026 by urgent care doctor. The pain came on...
I was diagnosed with PMR in January ... The pain came on what seemed like overnight ... which seemed to take care of all the pain ... At 2-1/2mg, the pain level was more ... I’m confused about how much pain to
Posted: Apr 25 11:24am
I remember how severe leg cramps would rudely wake me up out of a sound sleep...
The severe cramps with the pain and ... stiffness from PMR made me wonder why ... your doctor to check your electrolyte levels
Posted: 6 days ago
It took five months for me to get my PMR diagnosis. Initially it was thought that...
took five months for me to get my PMR ... PMR is a diagnosis of exclusion. ... ;s a necessary evil to control the pain ... and hematologist oncologist if my PMR ... pain returns to pre prednisone levels
@franklinlala "Some days I forget I have PMR, and that is miles from where I came...
"Some days I forget I have PMR ... few years after I was diagnosed with PMR ... half of the people diagnosed with PMR ... It would be nice to be pain free again ... my body by mimicking high cortisol levels
Posted: Apr 24 8:35pm
@pmrnew I went through the same struggle wondering what level of pain was acceptable in order...
through the same struggle wondering what level ... I had a good friend go down the PMR ... The goal is to have no pain. ... I don’t have pain. ... not to be confused with a PMR flare
Posted: Apr 24 10:36am
You are not alone in not knowing if it is a flare vs. other sources of...
PMR. ... levels can be misleading, as other ... conditions can mimic PMR pain and be ... That allowed my cortisol level to improve ... Research has shown that excess IL-6 levels
Posted: 5 days ago
I started showing symptoms of PMR in August of 2025 at age 61. I am a...
I started showing symptoms of PMR in ... and would be up at night in such bad pain ... This served no purpose as the pain was ... The frustration level was high but at ... Doctor on 12/02/2026 and she diagnosed PMR
Nobody ever promised me that I would be pain free when I tapered off Prednisone. Adrenal...
Nobody ever promised me that I would be pain ... " which also contributed to my pain ... I attributed any and all pain to PMR ... I used to describe PMR as "pain ... management often relates to addressing high levels
Posted: Apr 19 6:51pm
@robinleslie Of course you’re scared. I was scared. I remember the painful nights keeping me awake....
I remember the painful nights keeping ... He told me my SED Rate and CRP levels ... And, that I had classic PMR with also ... not so common hand and feet pain. ... If you have PMR, the immediate pain
I have had pmr for 5 years and my last 2 CRP tests have been normal...
I have had pmr for 5 years and my last ... ago as it makes no difference to my pain ... level. ... I am at my wits end with the pain and
@johnbishop ... If I waited to get to level 1 or less pain before I decreased...
If I waited to get to level 1 or less ... pain before I decreased my dose. ... of prednisone could be worse than PMR
Posted: Mar 14 2:15pm
Hi, It took me a year and a half to get to 0 mg. The last...
body to stop producing it's own pain ... to really feel the little aches and pains ... have been background noise before PMR ... controlling my discomfort with Tylenol at levels ... found that I did not seem to have much pain
I've been on monthly Actemra infusions since January 2025. Actemra allowed me to taper off of...
The pains are reminiscent of the pains ... don't have, which I had during PMR ... My energy levels are ok, but not what ... they were before PMR/GCA. ... I was always very active before PMR/