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154 total results
Comments (147)
@elleninz I started Tyenne in January. My doctor Dx GCA in early Nov and tried to...
My doctor Dx GCA in early Nov and tried ... I had asymptomatic GCA so did not need ... old-age type pains in joints rather than PMR ... pains, increased fatigue, interaction
I have pretty much had the same issues as has been mentioned in the comments so...
He diagnosed me with PMR and placed ... There is a good chance I have GCA, jaw ... So much fatigue, light headed and brain
Posted: 5 days ago
I had undiagnosed PMR for about 6 months before I developed symptoms of GCA. The GCA...
I had undiagnosed PMR for about 6 months ... before I developed symptoms of GCA. ... My GCA symptoms were low grade fever ... on my scalp, and jaw claudication (fatigue ... monthly Actemra infusions to treat the PMR
@tuckerp because my inflammation markers are abnormal and my body is responding to Prednisone, it is...
Prednisone, it is thought that I have PMR ... and a question of GCA. ... enough to cause the degree of pain and fatigue
Posted: Mar 3 9:42pm
@jr46 I'm sorry you developed GCA in addition to PMR. I also have both of them....
@jr46 I'm sorry you developed GCA ... in addition to PMR. ... ;m currently experiencing a little fatigue ... ;s from age (72), the Actemra, the PMR ... and GCA, or something else.
I was diagnosed with PMR last October! It has been a struggle and am on 60mg...
I was diagnosed with PMR last October ... now due to side effects similar to GCA ... want to lay down and sleep, so much fatigue
Posted: 3 days ago
Your experience was similar to mine, except it sounds like I had worse problems at the...
I had undiagnosed PMR for about 7 months ... , and then PMR and GCA symptoms for ... the ears and on my scalp, a lot of fatigue ... I know that my PMR and GCA have been ... I had extreme fatigue when I chewed
Posted: Mar 3 6:49pm
@linda7 "He told me that in my present condition, without any major side effects from prednisone,...
It hasn't been learned for PMR/GCA ... Prednisone after 12 years of treating PMR ... adrenal function while it controlled PMR ... The overwhelming fatigue on low doses ... than 3 mg of Prednisone to control PMR
Was diagnosed with GCA and polymyalgia in November 2023. Rheumatologist started me on. 60 Mg prednisone...
Was diagnosed with GCA and polymyalgia ... on. 60 Mg prednisone because of the GCA ... pain that I might experience from PMR ... /PMR was due to Covid vaccines and boosters ... of sinus/respiratory infection with fatigue
@pmrnew Be careful if you're not going to take prednisone. I developed PMR about 3 years...
I developed PMR about 3 years ago, and ... After a few months of untreated PMR ... Anyone with PMR needs to be familiar ... Up to 20 percent of people with PMR ... grade fever, pain in my cheekbones, fatigue
Discussion: New PMR diagnosis
Posted: Jan 26 12:19pm
Julie - I will reply, however I am on weekly home injectables and just started my...
I have had PMR/GCA Vasculitis since ... 2019 and was only diagnosed with PMR ... I do not have cranial GCA which means ... I did not have classic GCA symptoms ... pain, IBS-D, neuropathy, cold chills, fatigue
@peaceprevail7 I had PMR for several months before developing GCA. The PMR was primarily stiffness in...
@peaceprevail7 I had PMR for several ... months before developing GCA. ... The PMR was primarily stiffness in the ... around my ears and on top of my head, fatigue ... and PMR.
It's been over 2 years on my search for a diagnosis. Started with blood cancer diagnosis...
m back to square one with horrible fatigue ... saying based in my Mom's AIs - PMR ... , GCA and Raynauds and she also had ... said no wonder you were extremely fatigued
When I had untreated GCA my jaw muscles got extremely fatigued when I was chewing food....
When I had untreated GCA my jaw muscles ... got extremely fatigued when I was chewing ... I also had undiagnosed PMR before the ... GCA, so lots of stiffness all over, ... 't have PMR.
Discussion: Possible GCA
Posted: Feb 21, 2025
@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...
All those symptoms of extreme fatigue ... happen but nothing remotely like a PMR ... Kevzara is FDA approved for PMR and ... Actemra is only FDA approved for GCA ... that was recently FDA approved for GCA
Discussion: Tapering pain
Posted: May 6, 2025
Something very similar happened to my father, so I looked into this at the time. There...
are some case reports associating PMR ... make it more difficult to diagnose PMR ... personal opinion it’s so hard to get PMR ... it as “normal aches and pains” and fatigue ... He was never evaluated for GCA, and
Discussion: PMR & Statins
Posted: Jul 25, 2023
I’m new to the group and will throw my 2-cents worth in here re: vaccines. I’ve...
my legs (kinda like ‘gumby’ legs), fatigue ... Was finally diagnosed with PMR in 2020 ... had subsequent hospitalizations for GCA