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Comments (2,761)
Welcome @tyman23, Sorry to hear you've joined the PMR club but happy you have found Connect....
https://connect.mayoclinic.org/comment/1319172/
Sorry to hear you've joined the PMR ... /
-- How to Slowly and Safely Taper ... Off Prednisone but ... no set rules ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules ... search=COVID%20and%20PMR.
Diagnosed three years ago, and have tapered to a very low dose of prednisone. Although shoulder...
https://connect.mayoclinic.org/comment/1319098/
Diagnosed three years ago, and have tapered ... to a very low dose of prednisone. ... orthopedist, but I suspect it’s related to PMR
Very helpful. Thank you John. I may go the lazy way and try first the one...
https://connect.mayoclinic.org/comment/1208855/
boosts immune function and I’m on prednisone ... I’ve tapered to 10 mg but still in pain ... issues like does weather affect my PMR
"Therapy is based on empiric experiences because few randomized clinical trials are available to guide treatment...
https://connect.mayoclinic.org/comment/1327841/
that worked to control my PMR symptoms ... I was treated with Prednisone for 12 ... PMR was refractory and I was still on ... 10 mg of prednisone. ... I was able to taper my Prednisone dose
I have seen lots of posts where MTX did not work. Its an RA drug being...
https://connect.mayoclinic.org/comment/1162613/
have shown IL-6 to be elevated in PMR ... Kevzara is the PMR drug. ... keep your CRP down while trying to taper ... Below about 5mg of prednisone is going ... to still require a very slow taper
I am really hesitant to get the flu and Covid vaxs (not together). A year ago...
https://connect.mayoclinic.org/comment/1157883/
had both and 3 weeks later developed PMR ... Currently tapering Prednisone 0.5mg
Yes I was just diagnosed with GCA after having PMR for over a year. Diagnosis confirmed...
https://connect.mayoclinic.org/comment/1157802/
just diagnosed with GCA after having PMR ... Started on massive dose of iv prednisone ... Now tapering weekly following the AIACTA
I like to share my personal experience. I was on Prednisone for more than 12 years...
https://connect.mayoclinic.org/comment/1156086/
dose bursts followed by a fast taper ... After long term Prednisone use for PMR ... no matter how slowly I tapered. ... it was more complicated than a slow taper ... use, there was no tapering method that
I wouldn't listen to everything you read on PMRGCAuk. The forum with all the people sharing...
https://connect.mayoclinic.org/comment/1156055/
between adrenal insufficiency and PMR ... without tapering as long as my cortisol ... I did a fast taper from 3 mg to zero ... being on Actemra which controlled PMR ... dose for any symptoms resembling PMR
Thank you for your comments. During my 13 months of prednisone I had absolutely no negative...
https://connect.mayoclinic.org/comment/1154299/
During my 13 months of prednisone I ... Even as I slowly tapered there was no ... appear about 3 week after I stopped prednisone ... that maybe I had seen the last of PMR
Thank you so much. I took only 25mg of Lyrica at bedtime last night and did...
https://connect.mayoclinic.org/comment/1153368/
group during the 13 months I was on prednisone ... for PMR. ... and advice that people gave me about tapering ... off prednisone was so helpful.
I don't have any experience with Kevzara. I have taken Actemra for PMR for a long...
https://connect.mayoclinic.org/comment/1150737/
I have taken Actemra for PMR for a long ... that it took me about 6 months to taper ... insufficiency and also whether or not PMR ... I did a fast taper from 3 mg to zero ... once my cortisol level improved and PMR
A prednisone flare and a PMR flare are almost identical in pain. I generally think most...
https://connect.mayoclinic.org/comment/1148662/
A prednisone flare and a PMR flare are ... generally think most everyone has a prednisone ... Its true it may restart PMR thats why ... My thought its a prednisone flare from ... Then the only solution is to taper very
Thank-you for saying that. I think I'm doing "reasonably well" but I wouldn't go so far...
https://connect.mayoclinic.org/comment/1147500/
I have been off Prednisone for more ... uveitis resurfaced almost as soon as I tapered ... off Prednisone the first time. ... Then PMR resurfaced when I was off Actemra ... Unfortunately, PMR symptoms returned
No meant unable. Not preaching here but only explaining. Generally after about 2 weeks your body...
https://connect.mayoclinic.org/comment/1146659/
Cortisol is being supplied by the prednisone ... can no longer function without the prednisone ... Dr's attempt to taper you off the ... prednisone to allow your body time ... PMR unfortunately can take 6 months
Sorry to hear the fingers are involved. Hoping you get some answers at your follow up...
https://connect.mayoclinic.org/comment/1146457/
My first time with PMR was pretty awful ... and took me 3 and half years to taper ... off of prednisone with the last six ... and forth between 1 mg and 1/2 mg of prednisone
@carlarosie Hello and welcome to this PMR forum! There are some very knowledgeable people here that...
https://connect.mayoclinic.org/comment/1146405/
carlarosie
Hello and welcome to this PMR ... drug for GCA and will also help you taper ... your prednisone.
Was your prescription written 5 mg of Prednisone 2-3 times per day as needed? Is your...
https://connect.mayoclinic.org/comment/1143766/
for PMR is 15 mg every day taking the ... patients seemed to achieve remission of PMR ... A slow tapering of the prednisone, less ... Once prednisone is tapered to 10 mg/ ... to treat PMR for more than 12 years
Supposedly that was what happened before the Prednisone era of treating PMR. I pity the people...
https://connect.mayoclinic.org/comment/1142015/
era of treating PMR. ... to tolerate the pain and wait for PMR ... suppression so people need to taper ... Many people are never able to taper ... they taper.
Welcome @spiker, We are all a little different with our pain experience and tapering off of...
https://connect.mayoclinic.org/comment/1137930/
off of prednisone. ... me when I got down to around 5 mg prednisone ... and I had to taper by smaller amounts ... Exercise is good when you have PMR but ... How long ago was your last taper down
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