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Comments (2,905)
Hi @kmeikle1, Welcome to Mayo Clinic Connect and the big hurt club. There is most definitely...
https://connect.mayoclinic.org/comment/286630/
can relate to hitting a wall when tapering ... off of prednisone as I'm sure
Welcome @papasrockyworld, It is definitely a great feeling when that first dose of prednisone kicks in...
https://connect.mayoclinic.org/comment/955588/
off of prednisone. ... Many of us struggle with tapering and ... trying to taper too much and too fast ... to get off of prednisone. ... /discussion/when-and-how-to-taper-prednisone
Hi @bardy1953, Welcome to Connect. That's a great question and the answer might be easier than...
https://connect.mayoclinic.org/comment/749769/
off of Prednisone:
https://connect.mayoclinic.org ... /discussion/prednisone/
The biggest ... off and the last six months were going ... off of 3 mg prednisone. ... How long have you been on prednisone
Good morning @charlie01 I’m so sorry you were diagnosed with myositis. Autoimmune disease can be so...
https://connect.mayoclinic.org/comment/683708/
inclusion-body-myositis
You said that you’re on prednisone ... I started on heavy doses of prednisone ... The prednisone finally brought my disease ... I’m tapering off the prednisone and ... control without the side effects of prednisone
I hesitate to tell you this, but it's my story about Keytruda and you asked. Keytruda...
https://connect.mayoclinic.org/comment/1313319/
has taken me 2 years And I am still tapering ... off of Prednisone which has a lot of
Hi @eby, Good experience tapering off of prednisone is probably not the way most of us...
https://connect.mayoclinic.org/comment/1256735/
Hi @eby, Good experience tapering off ... of prednisone is probably not the way ... most of us that have done the prednisone ... tapering dance would describe the process ... the mornings along with my dose of prednisone
Hello @ingekunga, Welcome to Mayo Clinic Connect. The 6 months of back and forth between 1...
https://connect.mayoclinic.org/comment/597678/
and forth between 1 mg and 1/2 mg prednisone ... was after 2-1/2 years of being on prednisone ... off by trying to go down by 1/2 mg ... off of prednisone, my rheumatologist ... to the next lower dosage, I tapered
Hello @awag, Welcome to Mayo Clinic Connect. I also have PMR but it is currently in...
https://connect.mayoclinic.org/comment/137831/
I was started on 20 mg prednisone for ... both occurrences and was able to taper ... off with pain at a minimum. ... of activity or mild exercise while tapering ... off of prednisone and to accept a little
Welcome @grammy82, I'm happy to hear you found Connect also and it's great to hear your...
https://connect.mayoclinic.org/comment/856661/
was quite helpful for me when I was tapering ... off of prednisone.
My experience with Actemra has been very positive. I've been on Actemra since April 2024 due...
https://connect.mayoclinic.org/comment/1250229/
Actemra while still on 60 mg/day of prednisone ... , tapering off the prednisone over a ... Getting off the prednisone and transitioning ... Actemra helped tremendously, since prednisone ... Actemra and hope to be completely off
Hi @lawhoeburg, Connect was really helpful for me also when I was tapering off of prednisone...
https://connect.mayoclinic.org/comment/876985/
really helpful for me also when I was tapering ... off of prednisone my 2nd time around
@julieschiwal1972, You might want to discuss a slower tapering schedule for the prednisone with your rheumatologist....
https://connect.mayoclinic.org/comment/322310/
schedule for the prednisone with your ... off of prednisone for PMR symptoms. ... explanation of why RA especially if the prednisone ... My experience with tapering off has ... until I could finally stop taking the prednisone
Hello @mach92, welcome to Connect. Thank you for sharing your story. You are so right about...
https://connect.mayoclinic.org/comment/150885/
It took me three years to taper off ... of prednisone. ... dosage until I was finally able to get off ... I'm now at 5 mgs and trying to taper ... Wishing you luck on tapering off the
I was started on 60 mg last August because they thought I had GCA in addition...
https://connect.mayoclinic.org/comment/1016176/
When I was at 10 mgs and being tapered ... So when my PA recommended I taper back ... going to want me to cut back on the Prednisone ... you are describing during the final tapering ... itself, the tapering off the Prednisone
Hi @rogernj67, I think @alanbruce might be referring to working with your doctor to come up...
https://connect.mayoclinic.org/comment/137758/
doctor to come up with a schedule for tapering ... off of prednisone. ... withdrawal: Why taper down slowly? ... 20057923
Here is another discussion on tapering ... with your doctor and come up with a tapering
Hello @nothatkaren, Welcome to Connect. Good question and PMR does seem to sneak up on you...
https://connect.mayoclinic.org/comment/1189506/
I was started on 20 mg prednisone and ... month ago sounds like you might be tapering ... There are many PMR discussions on tapering ... off of prednisone that you might find ... search=tapering%20prednisone.
Hi @dadcue, I struggled my first time around with PMR and had a good discussion with...
https://connect.mayoclinic.org/comment/919146/
off of prednisone one of whom rung ... me when he said he had been on 1mg prednisone ... off. ... mg and 1/2 mg until I was able to taper ... off 6 months later with little to no
@irishdancer, I think you ask a very good question that each of us has struggled with...
https://connect.mayoclinic.org/comment/138197/
each of us has struggled with when tapering ... off of prednisone. ... off the first time but if I remember ... and forth between 1/2 mg and 1 mg prednisone ... off with tolerable pain/discomfort.
Hello @havana, Welcome to Connect. PMR can definitely be a challenge doing some of the things...
https://connect.mayoclinic.org/comment/1372897/
discussion you might find helpful for tapering ... off of prednisone:
-- How to Slowly ... and Safely Taper Off Prednisone but ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules ... new to PMR and currently at 15 mg tapering
Hello @raven42, Welcome to Connect. I'm not sure @bandruid7 is active on Connect since the members...
https://connect.mayoclinic.org/comment/792578/
Are there treatment alternatives to Prednisone ... I attribute the shorter period of tapering ... off of prednisone due to making some ... was and if you have a plan to taper ... off of prednisone?
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