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405 total results
Comments (387)
Hi Everyone. I was diagnosed with CIDP in April 2023. I had GBS in 1982. My...
I was diagnosed with CIDP in April 2023 ... My CIDP went all the way to wheelchair
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Mar 4 3:28pm
I was diagnosed last August with Guillain Barre Syndrome following a Covid infection and subsequently diagnosed...
I was diagnosed last August with Guillain ... a Covid infection and subsequently diagnosed ... with CIDP. ... The CIDP symptoms had been going on
Support Group: Autoimmune Diseases
Posted: May 22, 2024
Thank you for the articles and connection to others’ comments. I’m new here, so I wasn’t...
One year prior, I was diagnosed with ... CIDP and was temporarily paralyzed ... detrimental than the first time with the CIDP ... diagnosis.
Support Group: Autoimmune Diseases
Posted: Jun 6 8:27am
Hi - I am still searching for factors that may have come together to cause what...
testing in attempt to get definitive diagnosis ... trying the new FDA approved drug for CIDP ... CIDP?
Support Group: Neuropathy
Posted: Oct 21, 2024
This has been a very interesting discussion for me for several reasons. I was diagnosed with...
I was diagnosed with slight idiopathic ... extremities last year, I finally got diagnosed ... with a cause, CIDP, and was started ... problem of swallowing is related to the CIDP ... snoring was part of the sleep apnea diagnosis
Support Group: Neuropathy
Posted: Sep 21, 2024
Sorry for the side effects you are having. I can give you a "success" story --...
even two teaching hospitals, could diagnosis ... Rochester, and was given a tentative diagnosis ... of CIDP, and a recommendation for IVIG ... said he was now 99% certain of the CIDP ... diagnosis because of my response.
Support Group: Autoimmune Diseases
Posted: Aug 10, 2024
Prednisone long term can cause steroid myopathy but I would urge you to consider other possibilities....
drug and not improving, I was then diagnosed ... with CIDP, a form of Guillain Barre ... opposite I needed for my RA, SLE and CIDP
Support Group: Autoimmune Diseases
Posted: Jul 6, 2024
Several things stand out in your story. Did you have a Covid test done with the...
One that fits with your symptoms is CIDP ... leave no stone unturned in getting a diagnosis
Support Group: Autoimmune Diseases
Posted: Jun 30, 2024
I have relapsing polychondritis, RA, systemic lupus, and CIDP. My RP is the least of my...
polychondritis, RA, systemic lupus, and CIDP ... I was diagnosed because my rheumatologist
Support Group: Autoimmune Diseases
Posted: Jun 26, 2024
I am not diabetic. Mine is autoimmune. I have had emg/nerve conduction test and biopsy. You...
I was diagnosed with severe axonal sensorimotor ... I was diagnosed with cardiac autonomic ... is considered the gold standard to diagnosing ... I am fixing to be tested for CIDP and
Support Group: Neuropathy
Posted: May 27, 2024
How long did you have IVIG (gamma goblin). It keeps neuropathy from progressing and normally helps...
Diagnosed in 2018 and now they are checking ... me for CIDP. ... I was diagnosed with gastroparesis way
Support Group: Neuropathy
Posted: May 1, 2024
@debgio11 Hi, Deb. I am a 54 year old female with small fiber neuropathy, cervical spondylitic...
MRN, and bloodwork to rule out MS/CIDP ... I understand that CIDP needs a spinal ... tap to diagnose.
Support Group: Neuropathy
Posted: Apr 15, 2024
to harley22 I was diagnosed June 2023 after an EMG test with Sever Demyelinating and Axonal...
to harley22 I was diagnosed June ... When I looked that up on line I found CIDP ... The cause of my Diagnosis became Idiopathic
Support Group: Autoimmune Diseases
Posted: Apr 11, 2024
I watched the videos and thanks. I was diagnosed using EMG testing done BY THE DOCTOR...
I was diagnosed using EMG testing done ... I volunteer with the GBS/CIDP Foundations ... as well as Sining through CIDP.
Support Group: Autoimmune Diseases
Posted: Apr 5, 2024