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1,328 total results
Comments (1,292)
@pmrsuzie It was depressing news to me too when I found out after 12 years of...
https://connect.mayoclinic.org/comment/1510762/
The biggest thing that Actemra did was ... to control PMR without suppressing
Two weeks ago, I switched to Tyenne injections after 15 months on Actemra for GCA. I...
https://connect.mayoclinic.org/comment/1508855/
Tyenne injections after 15 months on Actemra ... notice some shoulder pain (also have PMR
@chamberlainrebekah5 I'm sorry you're having such a difficult time. I don't think Rinvoq is approved for...
https://connect.mayoclinic.org/comment/1505071/
#39;t think Rinvoq is approved for PMR ... far as I know it isn't used with PMR ... Some people take Actemra to treat PMR
@23patk I should say that PMR is being treated with a biologic instead of Prednisone. I...
https://connect.mayoclinic.org/comment/1503451/
@23patk
I should say that PMR is ... still doing a monthly infusion of Actemra
@jabrown0407 You are absolutely correct about doctors not being able to agree. When I was diagnosed...
https://connect.mayoclinic.org/comment/1502554/
When I was diagnosed with PMR, there ... who felt the strongest that I had PMR ... I asked at the time was, “What is PMR ... worked the best for me… my choice was Actemra
@kare1 It sounds like your prednisone dose is a little too low. 10 months of treatment...
https://connect.mayoclinic.org/comment/1499468/
too low. 10 months of treatment for PMR ... adults with polymyalgia rheumatica (PMR ... "
Prednisone, Kevzara, and Actemra ... isn't working well to treat your PMR
@caroljeand That's great that you got approved to stay on Kevzara. That's the best medication for...
https://connect.mayoclinic.org/comment/1498876/
That's the best medication for PMR ... pre-approvals for medications like Kevzara and Actemra
@rocksology I too am 68 years old and was diagnosed with PMR in February 2025. I...
https://connect.mayoclinic.org/comment/1493518/
68 years old and was diagnosed with PMR ... Although prednisone and Actemra have ... been working extremely well for my PMR ... pain, probably exacerbated by the PMR ... practitioner who wasn’t looking for PMR
@pmrnew Be careful if you're not going to take prednisone. I developed PMR about 3 years...
https://connect.mayoclinic.org/comment/1491104/
I developed PMR about 3 years ago, and ... After a few months of untreated PMR ... year and a half with prednisone and Actemra ... Anyone with PMR needs to be familiar ... Up to 20 percent of people with PMR
@pmrsuzie I hope just staying on 3 mg of prednisone for a few months helps your...
https://connect.mayoclinic.org/comment/1484522/
still needed help with preventing PMR ... flares and Actemra was invaluable ... stay on 3 mg of Prednisone without Actemra ... recently diagnosed with gout after PMR ... was treated with Actemra I'm learning
@shoregirljill "I started with PMR, immediately added GCI (Giant Cell) eventually they did add 1 or...
https://connect.mayoclinic.org/comment/1481622/
shoregirljill
"I started with PMR ... with uveitis about 15 years before PMR ... When PMR was diagnosed I was naive to ... Subsequent to PMR being diagnosed there ... mostly by the IL-6 cytokine because Actemra
@rocksology I'm on a biologic called Actemra (tocilizumab) which is in the same classification as Kevzara....
https://connect.mayoclinic.org/comment/1481439/
rocksology
I'm on a biologic called Actemra ... arthritis alone or in addition to PMR ... , it should be easier to get Actemra ... Actemra can be given as a monthly IV ... the authorization request that "Actemra
@tsc Teri, I had mild anemia too when I was diagnosed with PMR and GCA. My...
https://connect.mayoclinic.org/comment/1481095/
anemia too when I was diagnosed with PMR ... with treatment with prednisone and Actemra
@mwhite6262 yes, the jaw pain is in the joint, not like a toothache or root canal,...
https://connect.mayoclinic.org/comment/1479153/
shoulders, arms and hips does sound like pmr ... Kevzara or actemara (Same stuff really
@caroljeand It is probably okay for 18 hours but longer is better. Specific Steroid Holding Times...
https://connect.mayoclinic.org/comment/1477483/
It might be difficult for PMR/GCA patients ... hold my dose for 48 hours because Actemra ... prevented a PMR flare
@maye33 Prednisone was a friend of mine at a relatively young age before I ever heard...
https://connect.mayoclinic.org/comment/1477096/
PMR entered the scene almost 20 years ... weren't any biologics to treat PMR ... received authorization to treat me with Actemra
@caroljeand Just so you know ... Actemra comes in either a self administered injectable formulation OR...
https://connect.mayoclinic.org/comment/1470756/
Actemra comes in either a self administered ... Another possibility since Actemra is ... anymore --- biosimilars exist for Actemra ... approved for GCA but they should work for PMR ... There are patients with both PMR and
The way Kevzara and Actemra work is basically the same. They are classified the same …...
https://connect.mayoclinic.org/comment/1470687/
The way Kevzara and Actemra work is ... The chemical structure of Actemra and ... The biggest difference is Actemra is ... FDA approved for GCA and not for PMR ... Kevzara is FDA approved for PMR.
PMR / GCA positive diagnosis by pet scan thirteen months ago. ( nov 2024) After 3...
https://connect.mayoclinic.org/comment/1470356/
PMR / GCA positive diagnosis by pet ... and 12 months weekly subcutaneous Actemera ... immediate or long term side effects from Actemera ... curlier than before)
Currently nil PMR ... lifestyle ( long may that last)
Actemera
@martha13 Forxiga (dapagliflozin) is a first-in-class SGLT2 inhibitor, a type of oral medication that helps the...
https://connect.mayoclinic.org/comment/1469431/
I took Prednisone for 12 years for PMR ... After a biologic called Actemra allowed
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