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2,928 total results
Comments (2,761)
Hello @mach92, welcome to Connect. Thank you for sharing your story. You are so right about...
It took me three years to taper off ... of prednisone. ... I'm now at 5 mgs and trying to taper ... Wishing you luck on tapering off the ... prednisone and hoping your PMR goes
I have found that tapering even 5 mg at a time is too fast and I...
I have found that tapering even 5 mg ... enough experience and I think this PMR ... physician, she just wants me off of the prednisone ... side effects that I know of from the prednisone
Posted: Mar 28, 2017
Hello @jchatchett, I'm so sorry to hear about the side effects and the pain. I know...
My first occurrence of PMR I was put ... awhile he gave me a schedule to try tapering ... off of prednisone. ... went away enough I didn't need the prednisone ... My rheumatologist told me that PMR was
Hello @charlena, my symptoms are shoulder and arm pain/tingling. I'm a side sleeper and was waking...
The first diagnosis of PMR was in January ... I was put on 20 mg prednisone for both ... pain/stiffness for the first bout of PMR ... off of prednisone the first time. ... off prednisone for this second PMR
Tapering off Prednisone is very tricky. It also becomes difficult to separate out the medical conditions...
Tapering off Prednisone is very tricky ... The longer I took Prednisone, my rheumatology ... reactive arthritis and uveitis along with PMR ... Being on prednisone and being "unable ... to taper off prednisone" became
Posted: Oct 24, 2024
Hi, I'm a 72 yo female first diagnosed 6/23 was on predisone (varying dosages) for 9...
female first diagnosed 6/23 was on predisone ... side effects) 3/24 and was able to taper ... off of predisone within 4 mos. ... mos with virtually no symptoms of PMR ... I have been tapering down to every three
Posted: Mar 12 6:22pm
I don't think statins can cause or trigger PMR. I needed atorvastatin after Prednisone was started...
think statins can cause or trigger PMR ... was started to treat PMR. ... After I tapered off Prednisone, my clinical ... residual muscle pain I had after I tapered ... off Prednisone.
Posted: Jun 18 12:30pm
The longer you stay on prednisone, the longer it takes to get off. It mostly depends...
The biologic controlled my PMR inflammation ... but they weren't as bad as my PMR ... telling myself I wouldn't have a PMR ... endocrinologist said from 3 mg to zero no tapering ... 3 mg - 2 mg - 1 mg -zero countdown taper
Posted: Aug 26, 2024
There are many parts that ring true to me. I found that an endocrinologist's perspective on...
for PMR. ... When I tapered off prednisone, the same ... for PMR anymore. ... cortisol level stayed adequate and PMR ... I eventually tapered off Prednisone
Posted: Apr 28 11:16am
My liver enzymes, AST and ALT have both been elevated at various times since I was...
various times since I was diagnosed with PMR ... However, PMR was never suggested as ... Various medications used to treat PMR ... when atorvastatin was stopped after I tapered ... off prednisone.
Discussion: Elevated alk phos
Posted: Aug 16, 2024
Starting at 5, my taper was reduced to 0.5 per month. I successfully got to zero...
Starting at 5, my taper was reduced ... intermittent, few, random, and not PMR ... not ever change the daily dosage of prednisone
I have been on Actemra for 6 years and have done Actemra infusions for the last...
life has greatly improved since I tapered ... PMR but there was an insidious decline ... and what wasn't PMR. ... and never being able to taper off. ... to taper off Prednisone.
Discussion: Actemra Infusions
Posted: May 31 10:40pm
@andreamayo It is so true that everyone with osteoporosis is in their own phase of it...
osteoporosis from taking high doses of prednisone ... He's continuing to taper down on ... the prednisone with the hopes of being ... if he doesn't have a relapse in PMR ... That's why he's on prednisone
Posted: Jul 12, 2024
I did travel to Europe for 2 weeks while tapering this spring. I was a little...
travel to Europe for 2 weeks while tapering ... I got flu and covid. 4) I timed my tapering ... t go more than 24 hrs since taking prednisone ... the day before. 8) I kept my prednisone ... reassuring to know I wasn’t tied down by PMR
Discussion: PMR and travel
Posted: Jun 18 11:18pm
@susanew, My PMR has been in remission now for about a little over 6 years but...
@susanew, My PMR has been in remission ... time it took me 3 and half years to taper ... tapering off the first time was much ... me 1 and half years to get off of prednisone ... symptom/pain level log along with your prednisone
Posted: Aug 8, 2024
I have extreme, unbearable sweating with activity, not related to tapering. I have been on Prednisone...
sweating with activity, not related to tapering ... I have been on Prednisone for only 2 ... months due to a new diagnosis of PMR ... don't know which is worse, the PMR ... fella recently at a party, who has had PMR
Posted: Sep 15, 2023
Sadly ... we are told to take prednisone for more than a year for PMR. Then...
for more than a year for PMR. ... and over again when we attempt to taper ... if PMR was under control. ... My biologic was controlling PMR so a ... after trying for more than 12 years of PMR
The 7 mg barrier strikes again. That might be caused by adrenal insufficiency. Methotrexate (MTX) is...
7 mg barrier because it controlled PMR ... while allowing me to taper down to ... anymore to control PMR. ... I wasn't having any PMR symptoms ... so I certain PMR was being controlled
Sorry, you have joined the PMR club. This is a good group to ask questions and...
Sorry, you have joined the PMR club. ... When I was diagnosed with PMR and possible ... Once I started tapering, my sleep pattern ... Now, I know, that I need to taper at ... From what I understand, PMR can go into
Posted: Feb 7 3:42pm
It sounds to me like your PMR isn't controlled. I have GCA and PMR, and I...
It sounds to me like your PMR isn&#39 ... I have GCA and PMR, and I haven' ... I'm currently at 9 mg prednisone ... either stay there for a while or else taper