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Comments (2,483)
@jeanne5009, My friends have told me that I know more about the inside working of my...
https://connect.mayoclinic.org/comment/231520/
Diagnosed as asthma possibly related to tapering ... off long term prednisone) After pulmonolgist
I have multiple autoimmune disorders. My first Prednisone dose was more than 30 years ago. I...
https://connect.mayoclinic.org/comment/1309018/
My first Prednisone dose was more than ... taper off again in 4 weeks for some ... followed by a fast taper off Prednisone ... I was unable to taper off Prednisone ... followed by a "slow taper."
I’m sure the flu vaccine was the trigger for my PMR last October. I’m still trying...
https://connect.mayoclinic.org/comment/327799/
I’m still trying to taper off the prednisone ... shoulders and arms but I just want to be off ... the prednisone.
I was diagnosed with PMR and GCA in March 2024. Pain from the PMR was debilitating,...
https://connect.mayoclinic.org/comment/1300542/
My PCP started me on 60 mg of Prednisone ... and I have tapered off for the past ... I am finally off of it! ... I will do anything to avoid taking Prednisone ... Unfortunately, the Prednisone did some
"I also think there was a Connect member ( maybe there are many others here?) who...
https://connect.mayoclinic.org/comment/1209436/
who was /are using a rapid taper." ... ;
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How to taper ... off prednisone when treating PMR is ... myself off Prednisone than he could ... off prednisone quickly.
A biologic like Kevzara introduces another variable into the tapering process. When I tried another biologic...
https://connect.mayoclinic.org/comment/1308288/
At 3 mg of prednisone, it was determined ... from 3 mg of Prednisone to zero. ... I tapered anyway ... ... cortisol level improved the longer I was off ... Prednisone.
I suspect many people can taper by 1 mg per month. That is what the guidelines...
https://connect.mayoclinic.org/comment/1308271/
I suspect many people can taper by 1 ... people diagnosed with PMR are able to taper ... off Prednisone within 1-2 years by ... A Prednisone dose of 7 mg is said to ... my case, 6 months at 3 mg without tapering
I'm assuming your "off label" use of Actemra is for PMR since it isn't FDA approved...
https://connect.mayoclinic.org/comment/1312929/
I was able to taper off Prednisone after ... off Prednisone. ... After I tapered off prednisone I had ... off Prednisone. ... If you aren't able to taper off
That is another story. I took the plunge. I stopped Prednisone but did a "countdown taper."...
https://connect.mayoclinic.org/comment/1320239/
countdown taper." --- 3 mg - 2mg ... for PMR. --- I wanted to be off prednisone ... off Prednisone again. ... off Prednisone a second time. ... I successfully tapered off Prednisone
Did you experience any symptoms of adrenal insufficiency? Adrenal suppression is probably inevitable with any dose...
https://connect.mayoclinic.org/comment/1322423/
off in a month or two. ... tapering and how much Prednisone is ... difference in how long it takes to taper ... off. ... The problem with tapering off Prednisone
"This is hard work for patients because for most of that time, you have to run...
https://connect.mayoclinic.org/comment/1320699/
no wonder patients have a hard time tapering ... off prednisone and prednisolone.
My husbands treatment was Prednisone and mycophenolate also. He is not on any treatment now. He...
https://connect.mayoclinic.org/comment/1000427/
My husbands treatment was Prednisone ... which was tapered down by 10mg eac ... He had to go off the mycophenolate because ... He continued on the Prednisone taper ... for about 8 months then was off.
There was an "administrative process" for me to get approved for Actemra. My doctor did the...
https://connect.mayoclinic.org/comment/1271440/
An inability to taper off prednisone ... I was told that Prednisone for the rest ... improved tremendously since being off ... Prednisone for the last 5 years. ... , my doctor writes for a supply of Prednisone
I left that forum because of conflicts. They weren't interested in Actemra and said it wasn't...
https://connect.mayoclinic.org/comment/1280137/
They advocated for more Prednisone for ... They said Actemra and a fast taper off ... prednisone was "breaking their ... knew everything because of taking prednisone ... the only reason I had to do a slow taper
I have idiopathic peripheral neuropathy which started about a year after PMR was diagnosed. I started...
https://connect.mayoclinic.org/comment/1280389/
I started long term prednisone shortly ... progressively worse while PMR was treated with Prednisone ... After 12 years of Prednisone, PMR was ... I finally tapered off Prednisone. ... All I know is that Prednisone didn'
My dizziness happened on high doses of prednisone and recurred when my prednisone dose was less...
https://connect.mayoclinic.org/comment/1281613/
dizziness happened on high doses of prednisone ... and recurred when my prednisone dose ... It wasn't so much prednisone that ... blood pressure medications until I tapered ... off prednisone.
Welcome @tyman23, Sorry to hear you've joined the PMR club but happy you have found Connect....
https://connect.mayoclinic.org/comment/1319172/
comprehensive-overview-of-pmr/
-- How to Slowly and Safely Taper ... Off Prednisone but ... no set rules ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules
I like to share my personal experience. I was on Prednisone for more than 12 years...
https://connect.mayoclinic.org/comment/1156086/
high dose bursts followed by a fast taper ... to concede that I would never get off ... Prednisone no matter how slowly I tapered ... it was more complicated than a slow taper ... use, there was no tapering method that
I wouldn't listen to everything you read on PMRGCAuk. The forum with all the people sharing...
https://connect.mayoclinic.org/comment/1156055/
I mostly stayed on 3 mg of prednisone ... She said I could simply stop prednisone ... without tapering as long as my cortisol ... I did a fast taper from 3 mg to zero ... I have been off Prednisone for almost
Is there anyone that is newly off of prednisone (within the last month) that has experienced...
https://connect.mayoclinic.org/comment/1153744/
Is there anyone that is newly off of ... prednisone (within the last month) ... I'm only off Prednisone for two ... was wondering if this is part of the tapering
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