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Comments (2,483)
UPDATE: Still have not had any addition treatment! Was supposed to begin treatment with new doctor...
https://connect.mayoclinic.org/comment/1199563/
I have since tapered off the prednisone
Good morning , Similar to @1942marilyne I "stuck with this Mayo group and literature reviews "....
https://connect.mayoclinic.org/comment/1191581/
) I tapered down to zero mg Prednisone ... wrote : "And now even after I am off
Your CRP and ESR levels aren't that useful when taking Actemra. Anti-Il-6 therapy will reduce CRP...
https://connect.mayoclinic.org/comment/1187552/
in a better direction after I got off ... Prednisone. ... It took me about a year to taper off ... Prednisone after Actemra was started ... Some people remain on low dose Prednisone
"It sounds like you have a keeper for a rheumatologist. That is half the battle. I...
https://connect.mayoclinic.org/comment/1175222/
There is no way I can do 40-60 mg prednisone ... saw an endocrinologist who helped me taper ... off prednisone after Actemra allowed ... me to decrease my prednisone. ... I have now been off Prednisone for close
Hi @dengland, Your description of your PMR journey sounds similar to mine but you were a...
https://connect.mayoclinic.org/comment/1174720/
impressed that you have been able to taper ... your prednisone dose because I am still ... ridiculous and inflammatory markers go off
I appreciate how you are feeling but am thankful they have identified EGPA which does require...
https://connect.mayoclinic.org/comment/1172109/
which does require higher doses of prednisone ... infusion clinic.The hardest part was tapering ... down very slowly from the prednisone ... when on both drugs til you can get off ... prednisone.
Kevzara is now an option for me since it was FDA approved for PMR in February...
https://connect.mayoclinic.org/comment/1171767/
20cannot%20tolerate%20corticosteroid%20taper ... for Actemra was my being unable to taper ... off Prednisone and that all other alternatives ... I have been off Prednisone for 4 years ... It feels good to be off Prednisone.
My blood tests are never consistent with showing PMR. This has been going on for 7...
https://connect.mayoclinic.org/comment/1171639/
7 years and I still can't get off ... Prednisone. ... I also am on the 5 mg. trying to taper ... Methotrexate since August to help wean off ... the Prednisone but have been unsuccessful
There is an alternative to Prednisone now! It's Kevzara. Patients are initially put on Prednisone and...
https://connect.mayoclinic.org/comment/1170468/
There is an alternative to Prednisone ... Patients are initially put on Prednisone ... and a taper is attempted..if it fails ... , Kevzara ia added, the Pred is tapered ... off, and the patient can remain on
I'm not sure where the 10% rule comes from but I can never find any research...
https://connect.mayoclinic.org/comment/1220674/
longer it will take to taper off. ... The amount of time it takes to taper ... off prednisone depends on the disease ... off prednisone is any better than another ... off Prednisone very quickly because
I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of...
https://connect.mayoclinic.org/comment/1221155/
Started on 60 mg. of prednisone. ... My taper got me down to 8 mg. the first ... beginning of January 2025, I increased my prednisone ... I am going to hold off on beginning ... how others have managed/began their prednisone
It would be safe to say that my cumulative dose over my 13 years of PMR...
https://connect.mayoclinic.org/comment/1211163/
I usually took 60-100 mg and tapered ... off again in a month or two. ... corrective surgeries enabled me to taper ... Treatment with a biologic followed and I tapered ... I have been off Prednisone for 4 years
Yes . I was diagnosed in May 2021. It took me about 6 months to figure...
https://connect.mayoclinic.org/comment/1217751/
I tried prednisone and was better in ... I understood the pitfalls taking prednisone ... so I was determined to get off. ... I had almost no pain on 10mg prednisone ... think from adrenal insufficiency while tapering
I started Kevzara in November 2023. I was able to taper off Prednisone in about 3-4...
https://connect.mayoclinic.org/comment/1222209/
I was able to taper off Prednisone in ... Rhuemie took me off Kevzara and in about ... So now back on 20 mg of prednisone again ... back in and probably will with the prednisone
Other than an IL-6 level being interesting to know, I haven't had that level checked. I...
https://connect.mayoclinic.org/comment/1226858/
After Prednisone is started, I don' ... having a flare when they attempt to taper ... off prednisone.
@anncoco57, Thanks for sharing your experience with Reiki with your PMR. There are a few mentions...
https://connect.mayoclinic.org/comment/1206507/
Are you still tapering off of your prednisone
You might find it helpful to scan through the list of discussions on tapering off prednisone...
https://connect.mayoclinic.org/comment/1240110/
through the list of discussions on tapering ... off prednisone - https://connect.mayoclinic.org ... search=tapering%20off%20prednisone.
Hi @gee18, I'm wondering if a temporal artery biopsy confirmed your GCA. If so, then I...
https://connect.mayoclinic.org/comment/979854/
My rheumatologist had me taper down ... At the lower dosages of prednisone, ... 10 mg, I tapered down by 1 mg every ... I was on prednisone about 17 months ... and have been off it for 14 months with
What does your doctor recommend? You are fortunate to be able to taper from 20 mg...
https://connect.mayoclinic.org/comment/1209998/
You are fortunate to be able to taper ... I always admire people who can taper ... off Prednisone for the treatment of ... After many failed attempts to taper ... off Prednisone slowly, I went from 3
Great to hear your husband is doing better @joycj. It really helps to have a special...
https://connect.mayoclinic.org/comment/1214743/
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-- How to Slowly and Safely Taper ... Off Prednisone but ... no set rules ... discussion/how-to-slowly-and-safely-taper-off-prednisone-but-no-set-rules
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