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Comments (1,973)

I also have both , PN and Erythromelagia . It’s a constant daily struggle for sure....

https://connect.mayoclinic.org/comment/679502/

My diagnosis is Sjogrens ( includes

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Feb 10, 2022

Is there burning on the inside or outside of ear. I kept noticing my ear red...

https://connect.mayoclinic.org/comment/1094404/

and said if it’s the whole ear it Sjogren

Discussion: Undetermined Auto Immune

Support Group: Autoimmune Diseases

Posted: Jun 26 8:19am

I can only speak from my experience. My functional medicine doctor, using traditional lab tests, helped...

https://connect.mayoclinic.org/comment/882277/

using traditional lab tests, helped my Sjogerns

Discussion: Is Dr. Gundry and "leaky gut" a scam?

Support Group: Digestive Health

Posted: Jun 21, 2023

Hello and thank you for this support group! I have been scanning through the posts to...

https://connect.mayoclinic.org/comment/1055898/

I have Sjogren’s as well.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 23 11:10am

Welcome @jgoodall, A sunny disposition goes along way when dealing with neuropathy and a lot of...

https://connect.mayoclinic.org/comment/1055903/

You mentioned erythromyelagia and Sjogren

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 23 11:24am

Thanks for the link, although it doesn't look promising - the only local is ASU Health...

https://connect.mayoclinic.org/comment/1054941/

likely medical scenarios are early Sjogren

Discussion: So disheartened

Support Group: Neuropathy

Posted: Apr 21 7:34pm

Please find a new Dr. Hopefully one that has experience with Sjogren's Syndome, rituximab treatments, and...

https://connect.mayoclinic.org/comment/1050554/

Hopefully one that has experience with Sjogren ... As someone with Crohn's, Sjogren

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Apr 14 10:29am

I’m so very sorry I wish you could find other doctors. I’m terrible sorry I thought...

https://connect.mayoclinic.org/comment/1049359/

I have Sjogrens, Raynard’s, Small Fiber

Discussion: Can anyone assist me with any help in regards to my skin condition

Support Group: Autoimmune Diseases

Posted: Apr 12 8:07am

You should be checked for RA, Sjogrens, Lupus etc. even if you don't have any family...

https://connect.mayoclinic.org/comment/70280/

You should be checked for RA, Sjogrens

Discussion: I feel like I'm dying

Support Group: Digestive Health

Posted: Feb 23, 2012

I did not get the vaccine. I do not really trust the pharmaceutical industry and it...

https://connect.mayoclinic.org/comment/1051661/

tested me for Lyme disease, Lupus, Sjogren

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: Apr 16 9:09am

Thanks for your reply and information on best location for the injections. I will request thigh...

https://connect.mayoclinic.org/comment/1043240/

With most of my Sjogren's flares ... I think the Evenity is causing the Sjorgen

Discussion: Evenity and side effects: What helps joint and muscle pain?

Support Group: Osteoporosis & Bone Health

Posted: Mar 31 2:43pm

Hello dlydaily, Look into MR Neurogram, you will see what it looks for. Looks for damaged...

https://connect.mayoclinic.org/comment/1041682/

I have S.F.N, Sojgren's, Hashimoto

Discussion: Small Fiber Neuropathy, Sjogrens, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Mar 28 12:36pm

Hey John. Thanks for the welcome. I’ve been to Mayo three separate times and each time...

https://connect.mayoclinic.org/comment/991797/

lupus to migraines to arthritis to Sjogrens

Discussion: Tired of the gaslighting

Support Group: Autoimmune Diseases

Posted: Jan 5 9:24am

Hi Everyone, I have Congestive Heart Failure and recently wore a heart monitor for 6 days....

https://connect.mayoclinic.org/comment/1106409/

Even though I have Sjogrens, I have

Discussion: Heart Rhythm Conditions – Welcome to the group

Support Group: Heart Rhythm Conditions

Posted: Jul 16 8:00am

greg!!!!!!!!! IM SO HAPPY FOR YOU! SINCERELY! I FEEL LIKE LIFE IS NOT THE SAME, I...

https://connect.mayoclinic.org/comment/1106699/

ALSO HAVE SMALL FIBER NEUROPATHY, SOJGRENS

Discussion: TBI = Traumatic Brain Injury & Concussion

Support Group: Traumatic Brain Injury (TBI)

Posted: Jul 16 3:36pm

I have all of your exact symptoms. I have severe vagus nerve issues and neurological issues...

https://connect.mayoclinic.org/comment/1109102/

referred me to another Hospital with a Sjogrens ... Sjogrens can cause walking/Muscle Issues

Discussion: I’ve been living with long covid since late Spring of 2022

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 21 12:56am

Did Mayo Clinic test you for serinegative Sjogrens? I was tested for it came up positive....

https://connect.mayoclinic.org/comment/1100768/

Mayo Clinic test you for serinegative Sjogrens

Discussion: Support for small fiber neuropathy with cold intolerance sensory nerve

Support Group: Neuropathy

Posted: Jul 7 8:12am

I ended up being diagnosed with fibromyalgia in 2002 secondary to the bacterial spinal meningitis. The...

https://connect.mayoclinic.org/comment/1096585/

neuropathy, elner danlos 3, dystonia, RA, Sjögrens

Discussion: Chronic painful muscle knots, widespread

Support Group: Bones, Joints & Muscles

Posted: Jun 30 12:49am

Hi there, I'm beginning to think that the DRS are less than useless. What genetic condition...

https://connect.mayoclinic.org/comment/1097591/

asymptomatic on/off gluten; pSS, primary Sjögren

Discussion: 18 year old battling stomach issues - what should I do?

Support Group: Digestive Health

Posted: Jul 1 4:33pm

I appreciate the input. I will explore the supplements you describe. How are you sure you...

https://connect.mayoclinic.org/comment/1099334/

How are you sure you don’t have Sjogrens

Discussion: Phlegm in my throat and post nasal drip after Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 4 3:45pm