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375 total results
Comments (360)
Hi Rachel and Hank, I have never been treated at the Mayo Clinic. I had an...
an appointment the first year I was diagnosed ... I was diagnosed and still see a Mayo ... never mentioned a particular diet for CIDP
Support Group: Autoimmune Diseases
Posted: Sep 30, 2020
Hi, @sdswoboda53 - welcome to Mayo Clinic Connect. I'd be scared, too, if I began having...
I am glad you do have a diagnosis at ... may have explained to you about what CIDP ... join in, here are some resources on CIDP ... A Mayo Clinic Proceedings paper on CIDP ... explaining its history, diagnosis and
Support Group: Autoimmune Diseases
Posted: Jan 29, 2019
Hi all. I don't know what I have from day to day. First diagnosed with GBS,...
First diagnosed with GBS, sought out ... another neurologist and second diagnosis ... was CIDP. ... still having IVIG treatments for the CIDP ... I was hard to diagnose properly and
Support Group: Neuropathy
Posted: Jul 11, 2017
Hi @gratefulone, @jazzy27 and @lindy1956. I just tagged you in a discussion about CIDP where you'll...
just tagged you in a discussion about CIDP ... you'll join us there: - Anyone been diagnosed ... with CIDP?
Support Group: Neuropathy
Posted: Apr 11, 2017
Hello @suziep, welcome to Connect. Thank you for sharing the diagnoses you are facing with the...
Thank you for sharing the diagnoses ... inflammatory demyelinating polyneuropathy (CIDP ... - Has anyone on this feed been diagnosed ... with CIDP? ... pain are you experiencing with your diagnoses
Support Group: Neuropathy
Posted: Mar 9, 2017
Hello @johnhans, welcome to Mayo Connect and thank you for your question. I also have small...
fiber peripheral neuropathy which was diagnosed ... show_locs=Y#locn - CIDP – The Gripper ... Treatment Related Fluctuations in CIDP ... Kennedy asked if we knew how the diagnosis ... name from the idiot neurologist who diagnosed
Support Group: Neuropathy
Posted: Oct 15, 2016
Yes I was diagnosed with CIDP 7 years ago. When I was 16 I was diagnosed...
Yes I was diagnosed with CIDP 7 years ... When I was 16 I was diagnosed with GBS ... wheelchair for 4years , and was finall diagnosed
Support Group: Autoimmune Diseases
Posted: Feb 18, 2015
Hi - I am still searching for factors that may have come together to cause what...
testing in attempt to get definitive diagnosis ... trying the new FDA approved drug for CIDP ... CIDP?
Support Group: Neuropathy
Posted: Oct 21, 2024
This has been a very interesting discussion for me for several reasons. I was diagnosed with...
I was diagnosed with slight idiopathic ... extremities last year, I finally got diagnosed ... with a cause, CIDP, and was started ... problem of swallowing is related to the CIDP ... snoring was part of the sleep apnea diagnosis
Support Group: Neuropathy
Posted: Sep 21, 2024
Sorry for the side effects you are having. I can give you a "success" story --...
even two teaching hospitals, could diagnosis ... Rochester, and was given a tentative diagnosis ... of CIDP, and a recommendation for IVIG ... said he was now 99% certain of the CIDP ... diagnosis because of my response.
Support Group: Autoimmune Diseases
Posted: Aug 10, 2024
Prednisone long term can cause steroid myopathy but I would urge you to consider other possibilities....
drug and not improving, I was then diagnosed ... with CIDP, a form of Guillain Barre ... opposite I needed for my RA, SLE and CIDP
Support Group: Autoimmune Diseases
Posted: Jul 6, 2024
Several things stand out in your story. Did you have a Covid test done with the...
One that fits with your symptoms is CIDP ... leave no stone unturned in getting a diagnosis
Support Group: Autoimmune Diseases
Posted: Jun 30, 2024
I have relapsing polychondritis, RA, systemic lupus, and CIDP. My RP is the least of my...
polychondritis, RA, systemic lupus, and CIDP ... I was diagnosed because my rheumatologist
Support Group: Autoimmune Diseases
Posted: Jun 26, 2024
I am not diabetic. Mine is autoimmune. I have had emg/nerve conduction test and biopsy. You...
I was diagnosed with severe axonal sensorimotor ... I was diagnosed with cardiac autonomic ... is considered the gold standard to diagnosing ... I am fixing to be tested for CIDP and
Support Group: Neuropathy
Posted: May 27, 2024
I was diagnosed last August with Guillain Barre Syndrome following a Covid infection and subsequently diagnosed...
I was diagnosed last August with Guillain ... a Covid infection and subsequently diagnosed ... with CIDP. ... The CIDP symptoms had been going on
Support Group: Autoimmune Diseases
Posted: May 22, 2024
How long did you have IVIG (gamma goblin). It keeps neuropathy from progressing and normally helps...
Diagnosed in 2018 and now they are checking ... me for CIDP. ... I was diagnosed with gastroparesis way
Support Group: Neuropathy
Posted: May 1, 2024