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2,922 total results
Comments (2,755)
Did you actually taper off Actemra infusions? I haven't been able to discontinue Actemra injections or...
Did you actually taper off Actemra infusions ... off Prednisone. ... Almost as soon as I tapered off Prednisone ... another autoimmune condition but not PMR ... I wouldn't say PMR relapsed but
My pain started 20 days after a cardiologist quadrupled my statin dose. I stopped the statin...
suspected the statins had triggered PMR ... sed rate, etc started me on 15 mg prednisone ... have remained pain free as we slowly taper
Posted: Jul 27 10:41am
Hello @kcarman2383, I would like to add my welcome to Connect along with @dadcue and others....
diagnosed with my first time with PMR ... mentioned that you've only been on prednisone ... log, helped me during the process of tapering ... off of prednisone. ... the morning along with your dose of prednisone
Discussion: PMR at a young age
Posted: Jul 30 7:24am
Hi, Wow...you've been through it! Thanks for taking time to share your story. It scares me...
I was dx with PMR on June 5th and have ... been on prednisone 15 mg since. ... Now I will start tapering prednisone
A slow taper isn't necessary for all conditions. I could do 60 mg to -0- within...
I was diagnosed with PMR. ... off Prednisone after PMR was diagnosed ... Prednisone. ... After Actemra was started for PMR, I ... was able to taper off Prednisone again
Posted: Jul 4 3:32pm
There are different benefits to all three ways of getting Actemra. I have done all three...
I was able to taper off prednisone doing ... However, within two weeks of tapering ... I had a flare but not a PMR flare. ... Humira didn't control my PMR pain ... I tapered my prednisone dose from 15
Posted: Jul 8 1:36pm
Sadly ... other than lifestyle changes ... there doesn't seem like there is much you can...
If PMR is anything like my other autoimmune ... ---------- Since you were able to taper ... off Prednisone so soon -- that is a ... Long term Prednisone creates additional ... .. congratulations for getting off Prednisone
Discussion: PMR Remission
Posted: Jul 8 6:24am
I did travel to Europe for 2 weeks while tapering this spring. I was a little...
travel to Europe for 2 weeks while tapering ... I got flu and covid. 4) I timed my tapering ... t go more than 24 hrs since taking prednisone ... the day before. 8) I kept my prednisone ... reassuring to know I wasn’t tied down by PMR
Discussion: PMR and travel
Posted: Jun 18 11:18pm
"Therapy is based on empiric experiences because few randomized clinical trials are available to guide treatment...
that worked to control my PMR symptoms ... I was treated with Prednisone for 12 ... PMR was refractory and I was still on ... 10 mg of prednisone. ... I was able to taper my Prednisone dose
Posted: Jun 15 2:49pm
What I have found from the chat room, other PMR people, and my own Dr is...
have found from the chat room, other PMR ... that YOU need to be in control of the prednisone ... True, you want to be off of it (prednisone ... a year or more given the standard tapering
Posted: Jun 22 3:33pm
I was diagnosed with PMR end November 2024. I am currently on 8mg of prednisone per...
I was diagnosed with PMR end November ... I am currently on 8mg of prednisone ... everybody fighting this one, the key is to taper
"If the doctor is in too big a hurry to get you off prednisone, that can...
Being "encouraged" to taper ... off quickly is different from saying taper ... My doctor waited 12 years for me to taper ... I could have never tapered off without ... #34; because they were sure it was PMR
Posted: Jun 25 4:26pm
Thank you for relating your experiences with these diseases. It sounds like I will be on...
It sounds like I will be on both Prednisone ... I agree with you- perhaps you were tapering ... doctor did not understand that I had to taper ... two months( not the usual one month taper ... supposed" light at the end of the PMR
I was wondering the same thing about disposing of sharps. Thanks for your input also! I...
took my first KEVZARA dose with 12.5 Prednisone ... Will taper down in 4 weeks as the KEVZARA ... other guys I personally know have PMR ... I was told PMR mainly occurs in females
Posted: Aug 13 6:12pm
Hello, @jcb, and welcome. I'm sorry you lost part of your vision to GCA. I came...
infusions for 3 days, and started prednisone ... Your taper has been a lot faster than ... now, and I hope to be finished with prednisone ... haven't had any other symptoms of PMR ... and GCA or prednisone withdrawal since
Posted: Jul 20 3:12pm
My experience is similar to yours. I started it at 4 mg of prednisone for my...
I started it at 4 mg of prednisone for ... my PMR and I stayed on that for several ... months before I started to taper. ... I tapered from 4 to 3 and I was fine ... praying that I’ll be able to get off of prednisone
Mayo Connect is a good resource. There are many people in the USA being started on...
being started on Kevzara to treat PMR ... prednisone related complications, ... You will still need to taper off Prednisone ... It took more than a year to taper off ... Some of the time needed to taper off
Posted: Jun 18 1:49pm
I was treated for GCA in 2019. My symptoms started across my facial bones near my...
me on 60mg of "nightmarish" prednisone ... Tapered to 5mg over 6mos then possible ... still suffer from side effects of Prednisone ... Unfortunately, I'm now having PMR ... I Do Not Want to Take Prednisone due
Posted: Jul 25 2:53pm
"I will be off Methylprednisolone in 6 days and will keep up the Actemra infusions. I...
say if that's the Actemra or the PMR ... while trying to taper off. ... tolerance didn't improve as soon as I tapered ... off Prednisone. ... off Prednisone.
Posted: Jul 26 8:49am