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281 total results
Comments (268)
My husband has different NETs (Insulinoma) so too much insulin but have recently found that his...
https://connect.mayoclinic.org/comment/885855/
Now doing CAPTEM so will try if metallic
Hello, My husband has NETS “insulinoma” also very rare. Pancreas metastasized to liver. He is currently...
https://connect.mayoclinic.org/comment/908363/
He is currently on round 2 of CAPTEM
Started with two rounds of CAPTEM. Didn’t work at all. Then did 10 rounds of FOLFIRINOX,...
https://connect.mayoclinic.org/comment/796241/
Started with two rounds of CAPTEM.
@tomrennie Can I ask you when you were diagnosed, what grade and where NET originated (...
https://connect.mayoclinic.org/comment/1530693/
You mentioned you were on CAPTEM for ... What was the dosage when you were on CapTem
My Journey of doctors and second opinions - Local Community PCP ordered Ultrasound because of Liver...
https://connect.mayoclinic.org/comment/842699/
Mohammed - NET Specialist Oncology) ...CapTem ... Cancer Center NET Surgeon
Captem
My best to you. My husband did Folfox for 6 months. He had difficulty eating so...
https://connect.mayoclinic.org/comment/1100085/
He had less side effects from CapTem
My pancreas had an 8x6cm tumor. My liver also had innumerable lesions with the largest being...
https://connect.mayoclinic.org/comment/1254696/
I started captem.
Many factors to consider—grade of tumors, locations, whether well-differentiated or poorly differentiated. A close friend of...
https://connect.mayoclinic.org/comment/861020/
(a total of 62 rounds—60 IV and 2 CAPTEM
Chemo worked for me with my pnet. I was on CAPTEM for 13 months and now...
https://connect.mayoclinic.org/comment/1030195/
I was on CAPTEM for 13 months and now
Yes, we are going to UCSD for treatment. It appears that it is a 5yr clinical...
https://connect.mayoclinic.org/comment/1341917/
On the 4th cycle of Captem.
I take Lanreotide and as far as I know no side effects after almost 2 yrs...
https://connect.mayoclinic.org/comment/1196440/
and spreading so they switched me to CapTem
FWIW my wife, with a grade 2 stage 4 PNET with a large tumor on her...
https://connect.mayoclinic.org/comment/1320704/
good news is that her 9 courses of CAPTEM
@jlu I have been on CAPTEM for 9 months with minimal side effects. I have learned...
https://connect.mayoclinic.org/comment/858205/
@jlu I have been on CAPTEM for 9 months
@djchambers Do you know your dosage on CapTem? And what it was lowered to? The way...
https://connect.mayoclinic.org/comment/1530761/
djchambers
Do you know your dosage on CapTem
It technically is two chemo pills; capecitabine and temozolomide. You will take more than two of...
https://connect.mayoclinic.org/comment/881550/
Is the CAPTEM still working?
My experience: After discovery in Mar./2023 of a Grade 2, Small intestine NETs that metastasized to...
https://connect.mayoclinic.org/comment/1061064/
My Oncologist now wants to try the Captem
Thank you so much for sharing your story. It sounds like you have gone through a...
https://connect.mayoclinic.org/comment/1247729/
are going to cancel Cabo and start CAPTEM ... soon and I hope he will be okay on CAPTEM
Take a deep breath. There are lots of treatments for this cancer. I also have a...
https://connect.mayoclinic.org/comment/1219584/
I did the CAPTEM oral chemotherapy combination
Hi. Sorry it took me so long to reply. I traveled on Saturday to a NET...
https://connect.mayoclinic.org/comment/163157/
The 8 year old boy has tried CapTem
Well, let me know if there is anything that I can do to help. I just...
https://connect.mayoclinic.org/comment/839539/
I started CAPTEM about a week later. ... The Dr. only presented CAPTEM.
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