To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
790 total results
Comments (751)
I might be the only person who thinks prednisone might have caused me to have PMR...
prednisone might have caused me to have PMR ... adrenal insufficiency and a low cortisol level ... a long distance bicycle ride when PMR ... Eventually PMR was diagnosed. ... and how it feels when your cortisol level
Posted: Oct 21, 2023
I've developed PMR toward the end of summer [2023]. Like you I had never heard of...
I've developed PMR toward the end ... physically active, and it seems that my PMR ... finally raise my arms to shoulder level ... The overall pain was almost totally
Posted: Oct 7, 2023
Everyone situation is different. After 2 weeks of near total incapacitation I saw a rheumatologist who...
level was manageable and my muscles ... Still have pain every day. ... dancing as much fun as they were pre-PMR ... It seems to have helped with my pain ... levels and also keeping my weight in
Posted: Oct 2, 2023
Welcome @knyhus, Tapering off of prednisone can be difficult when you get below 5 mg. My...
My first time with PMR it took me 3 ... discussion you might find helpful: --- PMR ... Keeping a daily log with my level of ... pain when I woke up and the dose of ... helped me when tapering to a lower level
Welcome @angelinaboss, Sorry to hear you have so much on your plate at such a young...
important when I was struggling with PMR ... numbness and some tingling with no pain ... doctors why you have 3 times the normal level
Support Group: Neuropathy
Posted: Sep 9, 2023
I was diagnosed with PMR about 17 years ago. I took prednisone for 13 out of...
I was diagnosed with PMR about 17 years ... When IL-6 levels are too high we have ... inflammation to decrease and we feel less pain ... Technically, I still have PMR without ... the pain that PMR caused and the side
@marymckeith, If the prednisone worked great when you first started and it's not working now, maybe...
Slow tapering and only when your pain ... pain when I got up in the morning and ... of pain was greater than 2, I held ... discussion that might be helpful. --- PMR ... /connect.mayoclinic.org/discussion/pmr-dosages
Welcome @oldskibunny, I started both of my occurrences of PMR with 20mg prednisone doses. It relieved...
started both of my occurrences of PMR ... It relieved my pain within an hour or ... That’s a big plus for PMR. ... Do you keep a daily log of your level ... of pain when you first get up and your
Hi @napapos, I hope you don't mind but I thought I would reply to your private...
My PMR pain level was at 8 in the beginning ... Within a few days pain was at 2-3/10 ... Surprisingly my pain level is stable ... took Tylenol once in awhile when my PMR
Posted: Sep 1, 2023
Thanks for your reply @samara66 My a.m. cortisol level was tested and found to be low....
reply @samara66 My a.m. cortisol level ... do was 7 mg when familiar aches and pains ... insufficiency can cause muscle aches and pains ... dose down to 3 mg and stayed at that level ... My a.m. cortisol level improved to the
Hello @jaq, Welcome to Connect. You will notice that we moved your post to an existing...
beginning of the discussion: --- PMR ... /connect.mayoclinic.org/discussion/pmr-dosages ... had me keep a daily log to track my pain ... level and my prednisone dosage. ... taper down unless I have little to no pain
Posted: Aug 14, 2023
My rheumatologist originally gave me standing orders for monthly crp and sed rate tests. Both were...
were very high at the onset of my pmr ... greatly reduced hand swelling and pain ... I was down to less than 5 mg, no pain ... My crp level seems to correlate with ... pain.
Posted: Aug 7, 2023
Hi @pmrsuzie, Welcome to Connect. I'm sorry to hear that you have been dealing with PMR...
hear that you have been dealing with PMR ... My first time with PMR was 3 and half ... years and then six years later when my PMR ... Do you keep a daily log of your pain ... levels and prednisone dosage?
My symptoms, which were extremely severe, improved within a couple days of beginning Prednisone at 10...
after a couple days to 20 mg and the pain ... level went down to 2-3/10. ... , in getting rid of almost all the pain ... From what I've heard, most PMR sufferers ... that if this does not happen, the PMR
Posted: Jul 27, 2023
Hi there- Congrats on getting to 10 mg prednisone. But it can be disappointing to have...
disappointing to have a flare—between the pain ... If your pain increase is minimal and ... my PT’s guidelines are that if my pain ... level goes up by 2-3 points and remains ... For my family (father has PMR; I’m a
Hello @gerryandnancydupont, Welcome to Connect. What you are describing doesn't sound like the typical onset of...
;t sound like the typical onset of PMR ... start which got rid of all of the pain ... pain was under control. ... would start keeping a daily log of the pain ... level and locations along with any
Hi @johnbishop, Thanks so much for sharing your story with me. I have to say I...
feelings of your first experience with PMR ... Your second time experience with PMR ... level and my dose of prednisone for ... level of a 2 or 3. ... level of 8 out of 10, reminding me
I will try to answer your questions but I don't have any experience with Kevzara. My...
I got down to 10 mg with pain and 15 ... mg without pain. 2. ... for about 6 months until my cortisol level ... noticed in your health, aches and energy level ... but my GP says Actemra isn't a pain
Hi @bruce1951vet, It took me 3 and half years to taper off of prednisone my first...
off of prednisone my first time with PMR ... My second time with PMR six years after ... level when I woke up and my dose of ... down, I didn't taper down if my pain ... level was more than a 2 on my scale
@vellen I'm guessing 2 weeks was too soon to taper down. I've had 2 occurrences of...
I've had 2 occurrences of PMR and ... He had me keep a daily log with my level ... and 1-1/2 years the second time with PMR ... next morning I would stay at that level ... level and prednisone dosage?
Posted: Jun 24, 2023