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Comments (2,395)

An interesting journey Had MRI on August 20 found cancer growing into vestibule. Biopsy on Sept...

https://connect.mayoclinic.org/comment/1190687/

Started ORGOVYX.

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Dec 15, 2024

Thanks for sharing! I’m 5 months into Orgovyx and post 44 pelvic/prostate radiation treatments. PSA originally...

https://connect.mayoclinic.org/comment/1317170/

I’m 5 months into Orgovyx and post 44

Discussion: Post-treatment update

Support Group: Prostate Cancer

Posted: May 31 10:36am

Did you have ADT with your radiation treatments? Eligard is just one of many ADTs (Lupron,...

https://connect.mayoclinic.org/comment/1033235/

Why do you prefer Orgovyx?

Discussion: Urologist only offers Degarelix or Eligard, so what....

Support Group: Prostate Cancer

Posted: Mar 14, 2024

Thank you for the info on Orgovyx, my psa has started to rise after being cancer...

https://connect.mayoclinic.org/comment/869881/

Thank you for the info on Orgovyx, my

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 31, 2023

Thank you. The oncologist doubts that I have bone metastasis because my post-ADT testosterone readings have...

https://connect.mayoclinic.org/comment/1264133/

I really feel I was misled re Orgovyx

Discussion: Osteoporosis and Osteopenia treatment and prostate cancer?

Support Group: Prostate Cancer

Posted: Mar 22 12:01pm

I had proton radiation without medication with rectal cancer. I can attest to fatigue. It did...

https://connect.mayoclinic.org/comment/1082180/

With orgovyx I suspect a fatigue factor

Discussion: Fatigue and radiation

Support Group: Prostate Cancer

Posted: Jun 7, 2024

Someone mentioned before if you get the treatment, my firmagon in the center, it's covered. I...

https://connect.mayoclinic.org/comment/1154126/

it would cost 800 a month for the Orgovyx

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 8, 2024

I agree that the rise is important, not necessarily the number. I was 4.75, but it...

https://connect.mayoclinic.org/comment/903008/

sessions presently have 11 months of orgovyx

Discussion: New to Prostate Cancer with a boatload of questions, but who to ask?

Support Group: Prostate Cancer

Posted: Jul 27, 2023

Sorry to hear that your ADT side effects have been significant. There are other other 1st...

https://connect.mayoclinic.org/comment/890937/

option (Eligard, Gosselin, Relugalix, Orgovyx

Discussion: Treatment advice for prostate cancer

Support Group: Prostate Cancer

Posted: Jul 6, 2023

My surgeon failed to mention that until about 2 days before the surgery, "Oh, by the...

https://connect.mayoclinic.org/comment/882314/

and the way the orgovyx shrinks the

Discussion: Did anyone who had prostate removal experience penis length shortening

Support Group: Prostate Cancer

Posted: Jun 21, 2023

I’m sure all of us wish we could give you a definitive answer. I was diagnosed...

https://connect.mayoclinic.org/comment/1327276/

I started Orgovyx, Christmas Eve and ... I’m supposed to be on Orgovyx for two

Discussion: Intermediate Risk Prostate Cancer Treatment Decision

Support Group: Prostate Cancer

Posted: Jun 14 6:29pm

I had BCR in a matter of months...nodes clear, margins clear, but Perineural invasion was identified....

https://connect.mayoclinic.org/comment/995394/

39 radiation sessions and ADT meds (orgovyx ... The orgovyx comes with some side effects

Discussion: 1 node positive with RP followed by BCR after 3years

Support Group: Prostate Cancer

Posted: Jan 11, 2024

Orgovyx does have "superiority" over say, Lupron...my layman's understanding... No flare... Faster to castration Higher sustained...

https://connect.mayoclinic.org/comment/991118/

Orgovyx does have "superiority&#34 ... pops up on my phone and watch to take Orgovyx

Discussion: One month of Orgovyx completed

Support Group: Prostate Cancer

Posted: Jan 4, 2024

Post treatment, my PSA is tracking at 0.05. However, T has been slow to recover after...

https://connect.mayoclinic.org/comment/1098600/

, T has been slow to recover after Orgovyx

Discussion: T and PSA levels 6 month post SBRT and 1 month post Orgovyx

Support Group: Prostate Cancer

Posted: Jul 3, 2024

In clinical trials, 55% of people on Orgovyx recovered testosterone levels 90 days after a 48-week...

https://connect.mayoclinic.org/comment/1310871/

clinical trials, 55% of people on Orgovyx

Discussion: Testosterone Recovery after stopping orgovyx

Support Group: Prostate Cancer

Posted: May 23 7:42am

I was PSA 7.1 and Gleeson 4+3 = 7 in one core out of 12 or...

https://connect.mayoclinic.org/comment/1381275/

IMRT + one session of HDR + 6 months Orgovyx

Discussion: Surgery? Radiation? Can I have an independent suggestion?

Support Group: Prostate Cancer

Posted: Aug 28 12:00pm

I'm 75 and had similar experiences. Diagnosed in 2015, a prostatectomy, followed by 37 rounds of...

https://connect.mayoclinic.org/comment/1089066/

2023, the PSA hit 2.9 and I began Orgovyx ... I receive my Orgovyx directly from Mayo

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jun 18, 2024

Hello everyone! Hope you are all doing well, and thank you for your helpful comments. Just...

https://connect.mayoclinic.org/comment/1219125/

dad to be on the hormone treatments (Orgovyx ... PSA has gone from 38 before starting Orgovyx

Discussion: Is treatment for 88-year old Dad too aggressive for his age?

Support Group: Prostate Cancer

Posted: Jan 22 2:42pm

Thanks @brianjarvis The information you provided is helpful. However, @lsk1000 you indicated in another discussion thread...

https://connect.mayoclinic.org/comment/1340653/

My RO prescribed for me Orgovyx only ... that we would see if I could get off Orgovyx

Discussion: Hormone Therapy

Support Group: Prostate Cancer

Posted: Jul 3 7:26pm

I have no diagnosis, yet. The radiation oncologist thought diarrhea would subside once treatment ended and...

https://connect.mayoclinic.org/comment/1374787/

." Orgovyx publishes that diarrhea

Discussion: Diarrhea during/after radiation and Orgovyx?

Support Group: Prostate Cancer

Posted: Aug 20 7:31am