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979 total results
Comments (950)
@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...
After Actemra was started, I tapered ... happen but nothing remotely like a PMR ... to control PMR. ... Kevzara is FDA approved for PMR and ... Actemra is only FDA approved for GCA
Discussion: Tapering pain
Posted: May 6 11:16am
I was diagnosed with GCA and PMR 10 months ago. I started with 60 mg prednisone...
I was diagnosed with GCA and PMR 10 ... weeks, and I started taking weekly Actemra ... didn't notice anything from the Actemra ... prednisone and still taking the weekly Actemra ... of weeks to several months for the Actemra
Posted: Apr 21 6:54pm
"Others in this forum seem to have had good success with it." --------------------------- Now that more...
people are reporting success with Actemra ... I was on another PMR forum at the time ... was a backlash from the patient "PMR ... entitled" to know things about PMR ... inability to stop Actemra.
Posted: Apr 24 2:17pm
My experience has been very similar to yours. I was diagnosed with GCA and PMR in...
I was diagnosed with GCA and PMR in ... , and started weekly injections of Actemra ... 't had any pain or symptoms of PMR ... would say I am definitely back to pre-PMR ... have any drop off of energy between Actemra
Posted: Apr 24 9:07am
I saw the rheumatologist's PA today, and I asked her how long people with GCA usually...
long people with GCA usually take Actemra ... She said GCA isn't like PMR where ... the PMR burns itself out. ... enough that people have to keep taking Actemra ... and it says the typical duration of Actemra
Posted: Apr 25 2:27pm
The problem is that Actemra is only FDA approved for GCA and not always authorized for...
The problem is that Actemra is only ... not always authorized for treating PMR ... for people who are diagnosed with PMR ... definitive way to diagnose either PMR ... Other than PMR/GCA, there aren't
I was 52 when PMR was diagnosed and treated with Prednisone for 12 years. PMR never...
I was 52 when PMR was diagnosed and ... PMR never went into remission during ... I was on Actemra (tocilizumab) at 65 ... Actemra seems to work for all my autoimmune ... PMR is still being treated with Actemra
You have asked an interesting question. Nobody really knows how long PMR lasts except that prolonged...
Nobody really knows how long PMR lasts ... Some people say that for PMR the &#34 ... When PMR was diagnosed, I initially ... due to glucocorticoid therapy for PMR ... was treated with Actemra, remission
Posted: Apr 16 4:39pm
Actually the treatments for PMR and GCA are not the same. The biologic drug Actemra is...
Actually the treatments for PMR and ... The biologic drug Actemra is approved ... drug Kevzara is approved to treat PMR
Prednisone isn't the only option anymore but it is still the least expensive. There are other...
Actemra was the alternative that worked ... conventional medications used to treat PMR ... / -------------------------- Actemra ... ----- FDA-approved biosimilars to Actemra ... term Prednisone for the treatment of PMR
Posted: May 21 5:29pm
You can google this information. There are different inflammatory substances that contribute to PMR and GCA....
. " People with GCA and PMR ... Actemra and Kevzara both limit the effect ... inflammation is mostly caused by IL-6, Actemra ... I have GCA and PMR, and I have been ... taking prednisone for 11 months and Actemra
"No ... only about half of the patients on Actemra were able to get to 0...
only about half of the patients on Actemra ... were/are taking both prednisone and actemra ... to 0mg prednisone you stop taking actemra ... personally know anyone who like me has pmr
Posted: Jun 7 7:32am
I had facial swelling in my parotid gland on the right side of my face. It...
I have an autoimmune disease, PMR and ... was on biologic injections of Actemra
Support Group: Autoimmune Diseases
Posted: May 31 6:06pm
Just documenting my experience (I am 81) and....PMR came on in Oct. 2023 after a severe...
documenting my experience (I am 81) and....PMR ... rheumatologist and he said, if we start the Actemra ... On Actemra (the dose is prescribed by ... ankles since Oct. 2025 - after two Actemra ... Is it the Actemra infusion?
Discussion: Actemra Infusions
Posted: Jun 3 3:42pm
Hello jeanrod825 My diagnosis of GCA was October 2024 too ! Albeit mine is large vessel...
Albeit mine is large vessel GCA/ PMR ... with concurrent 162mg subcutaneous Actemera ... Side effects of Actemera nil except ... normal limits ) and absolutely no PMR ... Actemera has been a wonder drug for
Prednisone isn't the only option anymore but it is still the least expensive. There are other...
Kevzara was FDA approved for PMR on ... fda-approves-sarilumab-for-the-treatment-of-adults-with-glucocorticoid-resistant-pmr ... / -------------------------- Actemra ... Several FDA-approved biosimilars to Actemra
I agree with Jeff97. I doubt whether your taking enough of the steroid. 2 months is...
If you are taking Actemra that can take ... Actemra does not work for everyone. ... is a pretty heavy dose to control PMR
Posted: Apr 16 8:29am